Sorry to hear you're having so much trouble. Are you working with a gastroenterologist as well? The whole point of a pacemaker is to make the vagus nerve work so you can hold down food, so I would really urge you to get a second opinion. It sounds as though right now you will be on a J tube for the rest of your life, there has to be a better option. I also live in Texas, there is great medical care available, I traveled to Dallas, Houston and currently work with a great team of doctors in San Antonio that coordinate so everyone is aware of what is going on with my treatment. My primary disease is Lupus NPSLE, I also have fibromyalgia, sjogrens, raynauds. I've also been diagnosed with occipital and trigeminal neuralgia so I have learned to be my own advocate.
Lupus SLE 1996, Sjogrens, Raynauds. My worst nightmare was imagined when my son was diagnosed with RA and Lupus NPSLE at 19.