Severe loss of fat with inflammation first, Lupus?

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running wild
Regular Member

Date Joined Mar 2013
Total Posts : 280
   Posted 9/30/2017 6:37 PM (GMT -6)   
I am new to this forum, but I do have Lyme Disease and have posted there many times over the years.

Starting in 2012, I began losing fat on my body. Before any fat would "vanish," I noticed a light redissh or darker circle/tear drop shape area on skin. Once it was gone, so was the fat.

With treatment for Lyme Disease, I began feeling better and the circles/fat loss subsided. Was at about 85% for two years, then a surgery seemed to put my immune system in a tailspin. I started getting some strange symptoms like mild numbness in ring and little finger.

Felt a little better then started going downhill. By March, 2017, I was dead tired at end of day and Lyme type symptoms began getting worse. Started herbal treatment and clean diet, but noticed circles starting again. Then fat loss escalated beyond what had ever happened before and has only gotten worse.

I get dark circles now on my face, which has led to loss of collagen/fat there. And they are now everywhere - neck, face, chest... My face and ears burn at times. I get fatigued when in heat. Sun sensitive. The only thing I can find close to what it might be is a form of Lupus.

My Lupus tests have all come back showing nothing, such as normal ANA, c-reactive protein, RNP antibodies, Smith, Anti-DNA and more. But I have read forms of subcutaneous Lupus may not show up on blood tests. The rheumotologist said it is not Lupus, but will not do a skin biopsy.

I am a male with negative blood tests, but there is nothing I can find that would explain this, other than a skin form of Lupus.

Any input or thoughts would be appreciated as doctors just tell me to eat more, which is ridiculous. Are I am ridiculous? Problem is, if I am, I still have bad lipoatrophy of fat and collagen only. Muscles are fine. But I am very depressed with it all.


Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 10/1/2017 11:30 AM (GMT -6)   
I don't know where you live, but I'm in a VERY large metropolitan area, and we actually have a handful of dermatologists who specialize in auto-immune diseases. It seems to me that would be the kind of Dr you need to find, rather than a more traditional rheumatologist.

That is the only thing that comes to mind right now - if I think of anything else I'll come back and post again.

Good luck and let us know how it goes!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
"Life is far too important to be taken seriously." - Oscar Wilde
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