I don't know where you live, but I'm in a VERY large metropolitan area, and we actually have a handful of dermatologists who specialize in auto-immune diseases. It seems to me that would be the kind of Dr you need to find, rather than a more traditional rheumatologist.
That is the only thing that comes to mind right now - if I think of anything else I'll come back and post again.
Good luck and let us know how it goes!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde