Treatmenmt for Lupus-Plaquenil and Imuran

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Gram
New Member


Date Joined Jun 2017
Total Posts : 4
   Posted 10/21/2017 7:16 AM (GMT -7)   
Hello My physician wants me to start Imuran. Has anyone had success with the combo of Plaquenil and Imuran ?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7519
   Posted 10/21/2017 10:07 AM (GMT -7)   
Plaquenil is used to inhibit disease progression - most of us are started on it immediately and need to remain on it long-term. Takes 2-3 months to build up in your system.

Generally a rheumy will then choose one of these three; Imuran, Cellcept, or MTX to inhibit the over-active autoimmune system that is Lupus. There are no clear guidelines that recommend starting with one of these over the others -- and it's hit-and-miss which one will work best for any individual patient. It's simply trial and error!!

For me, Imuran did nothing. No positive results, and no side effects. So my Dr moved on to Cellcept, which was a miracle medication for me. Others here have gotten great results from either Imuran or MTX.

PS. I see that in June you were asking about MTX (Methotrexate). Did you end up trying that?

I found that following my Dr's instinct/experience/training gave me good results. The Dr knows exactly how your individual manifestation of the disease is presenting, what has already been tried, how you reacted to it... all of this information goes into how s/he chooses the next course of action.

Let us know how it goes!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Gram
New Member


Date Joined Jun 2017
Total Posts : 4
   Posted 10/21/2017 2:41 PM (GMT -7)   
This is the first drug being added to my regiment. She choose Imuran over Methotrexate because I enjoy red wine on the weekends. I'm pondering if its just best to forget about the vino and try Methotrexate first.
Gram

Ms.Peony
New Member


Date Joined Oct 2017
Total Posts : 2
   Posted 10/22/2017 4:18 AM (GMT -7)   
My doctor put me on 5 mg prednisone for a month while he did additional testing to confirm the lupus. Then he gave me the choice of one tablet of Imuran or 2-3 tablets daily of CellCept. Chose the Imuran but upon educating myself, am wondering if that was the best first choice. Had not heard of Plaquenil. It's all so confusing to a newbie. The prednisone did wonders for the pain and I am still on it so don't know how I'll know if Imuran is working.

melaids
New Member


Date Joined Oct 2017
Total Posts : 1
   Posted 10/22/2017 4:22 AM (GMT -7)   
Hi all, I live in Australia, I have read some of your posts interesting, I had, repeat had lupus SLE, I went to my current doctor (who is a naturopath) just after leaving hospital and the 2nd round of methylpred and she examined me and we had a long talk, her comments were I will have you off all their (renal doctors) crap in two weeks, I scoffed at her and decided to take her up on the offer, I had nothing else to live for so I said what the heck I will give it a go, 2 weeks after seeing her, I cold turkey stopped Plaquenil 400mg per day, prednisolone 50mg per day, naproxen 750 mg per day, sodium/senna 50mg per day, paracetamol sr 665 mg per day, pantoprazole 20 mg per day and myfortic 1440 mg per day I was a drug addict, I don't recommend doing what I did unless you are under the care and supervision of a registered trained naturopath.
Now I'm not a doctor here, but I got a second opinion from a registered naturopath and glad I did, I haven't taken a single pharma drug in two years, I'm back at work on the golf course (mind you I'm in the sun all day long, with no sunscreen) i feel great no facial butterfly rash, no joint pain, no skin ailments, no diarrhoea, no lack of energy and I sleep 6 - 7 hours a night, no night sweats, no vision problems from Plaquenil and no hair loss.
I refused chemo "Cyclophosphamide, mind you this is mustard gas", I changed my diet to a paleo lifestyle, no bread, no refined sugars, no coffee, no dairy, but I had plenty of fruit and veg and filtered clean water.

But if you feel that this is too much, that's ok, we are all different and I'm not here to change your life decisions and what you put in your body, I'm just giving people hope that this is reversible (something my renal doctors said couldn't be done) , lupus SLE is reversible, I have the past 4 years blood test recorded in a binder folder and the renal doctors letters to back up what I posting here.
one last word, do not do what I did unless your under the trained supervision of a real caring naturopath as I was, thanks for reading, cheers Adrian
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