Broke and no diagnosis

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New Member

Date Joined Nov 2017
Total Posts : 1
   Posted 11/2/2017 7:52 PM (GMT -6)   
Hello everyone, I am new here.

Would like to get some suggestions what to do....

I switched doctors in 2015 because I'd get different symptoms every week and when I went to my previous doctor and told her about all my symptoms, she told me for every single symptom I had to schedule different appointment that's $150 bill...for every single appointment. Her "treatment" or lack of thereof was useless so I switched doctors.

The new doctor sent me to see a Rheumatologist. That Rheumatologist diagnosed me with
Raynaud's syndrome and I've had ANA positive since I started seeing the new doctor. I've had ANA positive for 2 years now. No treatment, nothing is being done about it. All I know that it means that my body is attacking my own body...

I've had symptoms :
- Fatigue
- Metal very very sour taste in mouth
- sudden swollen knee with red circular shape (was unable to walk for 5 days) it went away on its own.
- Sudden fever of 103.9 also went away on its own
- horrible migraine headaches sometimes I vomit
- chest pain when taking deep breaths
- anxiety
- insomnia
- had kidney "problems" I didn't know about till one day my doctor ordered blood test to check something else and she called me next morning asked me to come to the office right away! I kept coming every day for 5 days doing blood work checking my kidney functions. I did not know I had kidney problems...
- Weird sensation in stomach it lasted for one week.

The sad and funny part that for all these new symptoms I text my doctor and she tells me "come to the office" she types something on the computer, I walk home and that's the "treatment" oh and I pay $179 per visit of course (I do have insurance).

So I feel like she does not want to diagnose me for some reason. I've had ANA positive for 2 years now. When I told her 2 years ago that ANA was positive, she said : "maybe you had a cold back then or a flu", now I've tested ANA positive again (I asked her do I have a cold now?) because I wasn't sick. And she said : "nahhh, not now". 1:160 - she told me with these test results no rheumatologist would want to see me....

I felt so bad that I texted her and asked to be send to rheumatologist that I had found by myself on Internet. Right now I was asked for more blood tests (did those) now awaiting my appointment. But I am curious based on all my symptoms and sudden attack on my organs why wouldn't she diagnose me???
I cry myself to bed that's how bad my legs hurt at times. The pain is so bad I cry from it....
She would not diagnose me and I can't sit for long periods of time to work. She refuses to give me disability and I've been broke paying all these medical bills. I don't know what to do next...

Sorry for long text.

Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 11/2/2017 9:12 PM (GMT -6)   
I'm a little confused.

Have you seen a rheumatologist or are you waiting to see one?

Who diagnosed you with Raynaud's Syndrome? Are you getting any treatment?

What Dr is "not diagnosing" you, and what is it you think you should be diagnosed with?

A positive ANA does not necessarily mean something is wrong. It is the combination of a positive ANA with a particular set of symptoms that results in a diagnosis. Lupus is diagnosed by a rheumatologist when a patient meets four or more of the following criteria:

1. Malar rash: butterfly-shaped rash across cheeks and nose
2. Discoid (skin) rash: raised red patches
3. Photosensitivity: skin rash as result of unusual reaction to sunlight
4. Mouth or nose ulcers: usually painless
5. Arthritis (nonerosive) in two or more joints, along with tenderness, swelling, or effusion. With nonerosive arthritis, the bones around joints don’t get destroyed.
6. Cardio-pulmonary involvement: inflammation of the lining around the heart (pericarditis) and/or lungs (pleuritis)
7. Neurologic disorder: seizures and/or psychosis
8. Renal (kidney) disorder: excessive protein in the urine, or cellular casts in the urine
9. Hematologic (blood) disorder: hemolytic anemia, low white blood cell count, or low platelet count
10. Immunologic disorder: antibodies to double stranded DNA, antibodies to Sm, or antibodies to cardiolipin
11. Antinuclear antibodies (ANA): a positive test in the absence of drugs known to induce it.

Let us know how we can help you,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
"Life is far too important to be taken seriously." - Oscar Wilde
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