Thanks in advance to those of you who post an answer.
I think this all started 5 years ago when we found mold in our house. Over the years since finding mold, I started getting fatigued, joint pain, agitated/irritated, my xiphoid process popped out, my upper left quadrant (spleen) was always sore, insomnia and frontal head/ear pain. Not much for doctors, I tried the homeopathic route until things started to get unmanageable. Fast forward to last year when I finally settled on an ENT for my health issues. He said I had a deviated septum which was causing chronic sinus infections and I needed a septoplasty. To my knowledge I never had any sinus problems, but his description and diagnosis seemed legit. I had a septoplasty in April and have been on the verge of loosing my mind ever since.
My face, right arm and back of head HURT throughout the day. My insomnia is way out of control, my vision gets blurry to the point I shouldn't drive, words are occasionally lost, my ULQ is still achy and I feel like crap most days. I met my deductible with my septoplasty, so I figured I'd go all in and try to resolve this problem while it was covered. Since I started my quest, things have gotten increasingly worse, to a unsustainable degree.
The ophthalmologist thought the problem might be optical migraines or auto-immune (slightly protruding eyes). The internist had no clue. The ENT thinks ocular migraines, but has otherwise blown me off and won't acknowledge any of my pain issues. The neurologist figured either the ENT did damage during surgery or some auto-immune problem. The neurologist said the pain s/s aren't inline with optical migraines. My MRIs came back negative for damage caused by surgery or any other brain issues. However, my AST levels are elevated and I also have an ANA 1:40. The neurologist prescribed beta blockers for the debilitating headaches and wants me to see a referenced family doc to figure out the rest. Up until 5 years ago, I was a very healthy former professional cyclist. I know how to endure pain and am body aware. I KNOW something is wrong, but like so many of the posts here, there is no easy answer.
Lupus has been discussed by both the ophthalmologist and neurologist.
Thoughts on my next step? Thoughts on my s/s? Please help!