Burning skin
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Lupus - 0.0%
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Nerve - 0.0%

 
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Lorn
New Member


Date Joined Dec 2017
Total Posts : 4
   Posted 12/21/2017 4:57 AM (GMT -6)   
Just found this page so I'm new, Don't know if any help to anyone, but I have found calamine lotion effective for burning skin. I've tried everything else, ice, heat, lotions, skin looks ok but it's the pain and discomfort that gets mee. I haven't been diagnosed with lupus, rheumatologist said its nerve damage, but too many similarities to lupus, time to get a second opinion I think

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 12/21/2017 12:46 PM (GMT -6)   
Welcome, Lorn -

Burning skin isn't generally a Lupus symptom. Lupus is diagnosed by having at least 4 of these 11 diagnostic symptoms.

1. Malar rash: butterfly-shaped rash across cheeks and nose
2. Discoid (skin) rash: raised red patches
3. Photosensitivity: skin rash as result of unusual reaction to sunlight
4. Mouth or nose ulcers: usually painless
5. Arthritis (nonerosive) in two or more joints, along with tenderness, swelling, or effusion. With nonerosive arthritis, the bones around joints don’t get destroyed.
6. Cardio-pulmonary involvement: inflammation of the lining around the heart (pericarditis) and/or lungs (pleuritis)
7. Neurologic disorder: seizures and/or psychosis
8. Renal (kidney) disorder: excessive protein in the urine, or cellular casts in the urine
9. Hematologic (blood) disorder: hemolytic anemia, low white blood cell count, or low platelet count
10. Immunologic disorder: antibodies to double stranded DNA, antibodies to Sm, or antibodies to cardiolipin
11. Antinuclear antibodies (ANA): a positive test in the absence of drugs known to induce it

If it's nerve damage, I wonder if you might need Lyrica or a similar medication? (Generally used for nephropathy of all kinds.)

Keep in touch!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Lorn
New Member


Date Joined Dec 2017
Total Posts : 4
   Posted 12/22/2017 3:46 PM (GMT -6)   
I have a lot of those symptoms, just got worse after an accident, but I seen a post on this site about the burning, I thought it might help if I shared what I find helps. I have arthritis symptoms, also lumps under skin and seems like a layer of fat under or in my skin I should say, which just appeared overnight after I had lymph nodes swell all over, lost 2 stone in a month, 2 gps said fibro, rheumatologist said fibrous tissue and nerve, but it's every inch of my body that is affected, (accident was rib and shoulder area only) but I'm not so sure, would appreciate advice on any particular tests to ask for, it's the not knowing and how debilitating symptoms can be daily. I'm on nueronton and allegron.

Tinkerbee
Regular Member


Date Joined Feb 2013
Total Posts : 51
   Posted 12/22/2017 4:48 PM (GMT -6)   
Hi Lorn
The first step would be to request an ANA test. I find the Johns Hopkins Lupus site very helpful.

https://www.hopkinslupus.org/lupus-info/diagnosing-lupus/
anthonyslupuschat.freeforums.net

Lorn
New Member


Date Joined Dec 2017
Total Posts : 4
   Posted 12/23/2017 5:00 AM (GMT -6)   
Thank you.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 12/23/2017 10:01 AM (GMT -6)   
It's important to know that a positive ANA in the absence of symptoms really doesn't mean a lot. And you can have Lupus without a positive ANA. So it's best to see a rheumatologist if you suspect Lupus and get a proper evaluation.

Here is what Johns Hopkins (Maryland, USA) has to say about a positive ANA.

"A positive ANA result means that you have a higher than normal concentration of these antibodies. This is one of the tools in diagnosing lupus as well as several other autoimmune diseases, so a positive result may be related to lupus or to another disease. Or you may simply have a higher than normal concentration of these auto-antibodies that may not have any impact on your health. Even among people with lupus, ANA results can vary widely; one person can be in remission at a certain titer of ANA while another can be extremely ill at the same titer. Autoimmune diseases often have a systemic effect on the body and are very complex by nature. Your healthcare provider will interpret what the test results mean for you and may need to compare your test results as well as the severity of your symptoms over a period of time in order to make a definitive diagnosis."
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Lorn
New Member


Date Joined Dec 2017
Total Posts : 4
   Posted 12/23/2017 5:39 PM (GMT -6)   
I really appreciate all the information, it's been a long painfull couple of years, as you obviously know yourselves, it's hard to get right answer, and at this stage all I want is an answer, at least then I can move in the right direction, do what I can myself to help myself. Thank you for all the info, I just want even one day of my life without pain. I can't remember what life was like without it, it all just got out of control after accident, but pain seems to have controlled me for too long, too many years
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