According to my internist, infectious diseases doc (lymes, nothing active now they say but I did have a positive IGM antibody b. burgdorferi, but negative IGG western blot), and rheumatologist, I am a "conundrum." I have not been feeling well for a couple of months now. Extremely fatigued, short term memory loss, every bone in my body hurts it seems, headaches, face rashes but only my nose and chin, not forehead, my parotid/salivary glands swell up huge like mumps (never both, it's one then the other) and I go straight to 103 degree fevers. I've been coughing it seems for a month straight "but your lungs look good!" on xray (I'm coughing up blood!) I was in ER two weekends ago with "severe vomiting/nonspecific" and "abdominal pain/nonspecific" as CT of abdomen was "normal." They concluded stomach flu, gave me Zofran and sent me home.
So far, my tests are Positive ANA, high Sed Rate (57), CRP elevated (39). "Trace" blood urine ("normal"). My rheumatologist did a Protein Electrophoresis Blood panel, and it's all "normal range" but, each one is the highest number in that range (Gamma gobulin 1.4, with 1.4 highest, alpha 1 gobulin 0.3 with 0.3 highest, etc.) and other tests, which barely scrape the low ends of "normal." Even a spinal tap was done and normal (trace blood, but they say from needle puncture).
I've had bad knees for a couple of years, so that hurting isn't new. But I've had weird things, like no reflexes in my left leg (banged on knee, scraped bottom of foot, no movement but I felt it). I do have a couple tests yet to complete (head MRI, upper endo w/colonoscopy). I get big toe pain, but no obvious swelling/redness to suggest "gout." I've had depression/PTSD for several years (my daughter died when I was with her) but I think under great control, although last month I had a "psychotic" episode which was new (a grocery store incident I'd rather not go into, embarrassing and NOT like me at all) and I cry at the drop of a hat.
Sorry if this is long, I am just tired of all the appointments, hospital trips, etc. when I am feeling so poorly to begin with. I am coming to the Lupus board because it was a word that my rheumatologist was making reference to, she said something is obviously up with my sed rate, crp, positive ana, fever/chills of unknown origin but she wasn't going to try to put it all together yet. I am so tired...it's the first year ever I don't have a Christmas tree up, not one present bought, etc. Just showering once or twice a week is horrendous and I need a nap afterwards! This is not me at all...
Thank you all for any thoughts/comments/insights... Hugs (Sjogren's ruled out, no dry eyes/mouth)
Post Edited (LadyLynda0712) : 12/22/2017 8:29:16 AM (GMT-7)