Liver Problems

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Regular Member

Date Joined Jun 2008
Total Posts : 49
   Posted 1/20/2018 12:15 AM (GMT -6)   
Hello everyone, wishing you all the best.
Tonight I post about an issue that has been kind of hovering over me for a long time.
When I was being diagnosed for all the baggage I had been carrying around, among the SLE, Sjogren’s,
Addison’s disease, IgA deficiency, hypothyroid....was abnormal liver enzymes.
These enzymes have been living around the perimeter of everything since about 2003.
I was first tested and unltrasounded and told that the good news was they found no cancer, the bad news
that I had fatty liver disease. It was caused by all the prednisone I live on ☹️.
But nothing ever had to be done and I have blood work every so often where the enzymes are up.
Once I had to discontinue the Methotrexate I was on to try control the lupus.
Problem....the enzymes are up often now. My hubby remembered from way back then that I was told that things would be okay for about ten years....I didn’t remember that.
Anyway along with the elevated enzymes I am experianci g other symptoms.
With everything I deal with it’s hard to know exactly what symptom belongs to what, but I am pretty good
at the sorting.
I find that the first thing is really bad fatigue, so bad that it feels like narcolepsy! There are times when I just need to get somewhere warm and soft and lay down. I fall asleep so fast and so hard I barley remember laying down. Funny as sleep is not normally a strong point for me.
Then I find I itch and my skin gets real dry, dehydrated even. My youngest can actually stick to the roof of my mouth so bad it kind of hurts to move it when I wake up. It is absolutely dry, zero moisture.
I drink water like a fish too.

Sometimes I wonder if it’s Sjogren’s...or is this a liver issue.
In the spring of 2016 I learned about ITP. It’s a blood disorder where your platelets drop, and mine dropped out of sight. I ended up on almost a year of high dose prednisone and then when that didn’t work chemo.
Then there is the insomnia....much different than the fatigue sleep. I can go to bed and lay there for hours trying to sleep. Or fall asleep because I am so tired to sleep only for a few minutes and wake up and cannot go back to sleep.

Then there is the nausea. Sometimes it’s so bad that I wake up in the morning I vomit.😧
And I have a terrible time eating. My appetite kind of disappears or if I do eat I end up nauseated again.
There’s some pain then too, it’s on my right side tummy and around to my back.

So I don’t know are these symptoms about liver? I was never really told about symptoms.
Or is it just everything else?
Thanks, Tuffymason

Forum Moderator

Date Joined May 2005
Total Posts : 7673
   Posted 1/23/2018 10:23 AM (GMT -6)   
I don't really know how Lupus affects the liver, but I did find this article that may help you. /

Let us know if we can help further.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
"Life is far too important to be taken seriously." - Oscar Wilde

Veteran Member

Date Joined Apr 2006
Total Posts : 1335
   Posted 2/3/2018 4:21 PM (GMT -6)   
Lupus can attack the liver directly and cause a type of hepatitis. Your AST, ALT and other liver markers will be elevated. If you have these you should see a hepatologist. Treatment is generally to aggressively suppress lupus. I had a rather severe problem 4 years ago and it mysteriously went away on its' own. Fortunately no liver damage but we watch it carefully.
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

Veteran Member

Date Joined Mar 2014
Total Posts : 4574
   Posted 2/4/2018 2:15 PM (GMT -6)   
Might be genes too. There are many liver genes on 23andme testing. I found out that I have multiple gene issues, thus I'm kinder to my liver now.

D-limonene which has numerous posts about will speed up a slow liver phase II methalation pathway.

The result- you feel a little more energetic, no more racoon eyes, and its good for anziety and digestion. Its a better liver detox that all the other ones people mention here, and seldom known. Goggle Jarrow site, D-limonine.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

Regular Member

Date Joined Jun 2008
Total Posts : 49
   Posted 3/5/2018 7:22 AM (GMT -6)   
Thanks everyone. It’s been a while but I am just getting to feel a bit better.
I ended up increasing my prednisone dose from my replacement dose for the addison’s Disease, 5mg am and 2.5 mg pm to total 15 mg...doubling for a week and it has helped allot...I am now tapering back and we’ll see if it has settled.
I will re-read your posts and so some studying.
I have an appointment with a gastroenterologist in May.
Thanks again.
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