Mentol sensation through body

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New Member

Date Joined Jan 2018
Total Posts : 2
   Posted 1/20/2018 11:41 AM (GMT -6)   
I'm new to this forum, so please forgive my mistakes. For the past couple of months, I've had this feeling of mentol running throughout my body, from my eyes, sinuses, mouth etc. feels like ice water running through me. Had a positive ANA test in Oct. 2017 with speckled pattern. waiting for an appt. with rheumatologist in April 2018. PCP says probably lupus. haven't seen him yet to tell him about menthol sensation. I'm 77 and have had fibromyalgia for many years, but until the Oct. test, was never tested for lupus or any other autoimmune disease. I would very much appreciate any comments from others who may have, or had this strange menthol sensation.

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 1/23/2018 11:26 AM (GMT -6)   
I don't quite know what to make of the sensation you describe - don't think I've ever experienced or heard of anyone experiencing anything like that.

Sure hope you can get an earlier appointment with the rheumatologist! Have to asked ot be put on their wait list in case someone else cancels?

In the meantime, take note that Lupus is NOT diagnosed by bloodwork alone, but by having 4+ of the 11 diagnostic criteria.

1. Malar rash: butterfly-shaped rash across cheeks and nose
2. Discoid (skin) rash: raised red patches
3. Photosensitivity: skin rash as result of unusual reaction to sunlight
4. Mouth or nose ulcers: usually painless
5. Arthritis (nonerosive) in two or more joints, along with tenderness, swelling, or effusion. With nonerosive arthritis, the bones around joints don’t get destroyed.
6. Cardio-pulmonary involvement: inflammation of the lining around the heart (pericarditis) and/or lungs (pleuritis)
7. Neurologic disorder: seizures and/or psychosis
8. Renal (kidney) disorder: excessive protein in the urine, or cellular casts in the urine
9. Hematologic (blood) disorder: hemolytic anemia, low white blood cell count, or low platelet count
10. Immunologic disorder: antibodies to double stranded DNA, antibodies to Sm, or antibodies to cardiolipin
11. Antinuclear antibodies (ANA): a positive test in the absence of drugs known to induce it.

Let us know if we can help further.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
"Life is far too important to be taken seriously." - Oscar Wilde

New Member

Date Joined Jan 2018
Total Posts : 2
   Posted 1/23/2018 3:51 PM (GMT -6)   
Lynnwood, thank you for your response. I see 4 or 5 of the markers you included. I got to by googling "lupus and metholatum", and a post from 2013 popped up, with the symptoms I described. May not be connected to lupus at all, but some other auto-immune disease. I'll keep searching.
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