lupus flare ups- too exhausted

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

jane124
New Member


Date Joined Jan 2018
Total Posts : 4
   Posted 1/23/2018 11:28 PM (GMT -6)   
Hi everyone,
I've lived with lupus for 2 years. I used to treat the disease with Prednisone, Turmeric and vitamin D3 Recently, lupus flares have recurred and make me exhausted. Fatigue, joint pain and short of memory. What should i do to reduce flares?
Thank you!

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 1/24/2018 11:22 AM (GMT -6)   
Treatments in order of general use -

Plaquenil to slow disease progression, 2-3 months till it takes effect.
Prednisone (corticosteroid) for inflammation, or if it lasts longer, Imuran, Cellcept, or MTX as "steroid-sparing" treatments for inflammation and disease control.
If none of those make a dent, there are the heavy duty treatments Benylsta, and IVIG.

Reduce flares by avoiding stress! Getting plenty of deep restorative sleep, regular moderate exercise, and healthy eating also help.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Jenifer1203
New Member


Date Joined Dec 2017
Total Posts : 5
   Posted 1/24/2018 9:33 PM (GMT -6)   
Hi jane124,
As a lupus patient, I see that stress, unhealthy lifestyle and harmful diet will trigger lupus flares. I used to be exhausted to cope with the disease. But now, I accept it as a part of my life. I think following tips may help you to reduce flares
- Limit stress. You can do anything you like to avoid stress, including watching exciting films, reading interesting books, listening to music, or hanging out with your friends. Also, remember to reduce your work if you're tired.
- Get enough sleep. Lack of sleep can trigger flares, so you need to sleep at least 8-9 hours each night.
- Find support. If you're under pressure, you should find a trusted person to share your issues.
- Eat healthy foods. Try to avoid processed or fried foods. Instead, eat more salmon, broccoli, tuna, flaxseed and fruits.
- Do exercise. Exercise may be difficult for you on the first day. But you can try some gentle exercises like yoga, Tai Chi or walking.
Lupus flares often come and go many times, so you should have healthy lifestyle habits and diet to reduce flares. Also, you may take supplements to boost your health.

jane124
New Member


Date Joined Jan 2018
Total Posts : 4
   Posted 1/24/2018 10:07 PM (GMT -6)   
Hi Lynnwood,
Thank you for your reply. Though I try to avoid stress, it still finds me

jane124
New Member


Date Joined Jan 2018
Total Posts : 4
   Posted 1/24/2018 10:20 PM (GMT -6)   
Hi, Jennifer1203
thanks for your useful tips. Exercise seems to be hard for me, I tried walking but actually I felt too exhausted. Recently, I've begun eating broccoli, flaxseed and salmon that I really hate before that. This may be good for me. For sleep, I often go to bed at 10 pm, but sometimes, I can't sleep because of too tired. I wanna ask you: do supplements work well? I see many lupus patients take them to reduce flares

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 1/25/2018 9:12 AM (GMT -6)   
Be careful with supplements -- it's actually best to ask your rheumatologist before adding any to your diet. Some things that "boost immunity", for instance, sound like a good idea but are actually the opposite of what a Lupus patient should be doing. Thus my advice to verify with your Dr - what you want to take can counteract what your Dr is trying to do with your meds. And, even if what you take is helping and Dr approved, the Dr needs to know about it to have a complete picture of your health and how to treat you!

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

jane124
New Member


Date Joined Jan 2018
Total Posts : 4
   Posted 1/25/2018 9:35 PM (GMT -6)   
Thank you so much- Lynnwood!
As my grandmother has taken lupufree and vitamin suppls that help reduce her symptoms, I just think that supplements also help me to fight against lupus flares. I'll have an appointment with my doctor on next Monday and maybe I'll ask my doctor carefully.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 26, 2018 12:23 AM (GMT -6)
There are a total of 3,006,704 posts in 329,381 threads.
View Active Threads


Who's Online
This forum has 161845 registered members. Please welcome our newest member, StanInCA.
148 Guest(s), 4 Registered Member(s) are currently online.  Details
PeterDisAbelard., oregonhay, Cajun Jeff, White Beard