New to Methotrexate

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Date Joined Jan 2017
Total Posts : 57
   Posted 2/8/2018 8:37 AM (GMT -6)   
I was diagnosed with lupus a year ago. (At 57) had been sick for a couple of years before finally getting a diagnosis. I'm one of the lucky ones not having to wait so long as others have. Was given plaquenil 200 mg twice a day and gabbapentin 600 mg 4 times a day. I'm still having flares, all with the heavy joint pain, exhaustion and my friend the butterfly rash. And just before the lupus diagnoses was also diagnosed with chronic kidney disease. My kidneys are working at 43 percent. Anyway since my lupus is not getting better on the plaquenil the rheumatologist have given me a prescription for methotrexate. He has talked with me about all the side effects. The one that scares me the most is the hair loss. Now with the lupus my eyelashes have fallen out and my eyebrows are putting up a good fight. But the hair on my head is still there. I'm very vain about my hair. It's very thick, I wear it very short since the lupus. And I get it cut every two weeks. I want to find out from those of you who take methotrexate what side effects you have. And is it working to control your lupus. I was surprised to learn that if this drug works I will be on it permanently. Thank You for all of your inputs and advice. God Bless. Have a pain free, rash free day! wink

Regular Member

Date Joined Jun 2016
Total Posts : 60
   Posted 2/8/2018 2:02 PM (GMT -6)   
Hi ! I am so sorry that your having such a hard time! I have been on methotrexate for some time now, almost or just over 2 years. Its very important that you take folic acid supplement with it. I have not had anymore hair loss with being on it. I was having some before starting it when my lupus began. My hair in general is much thinner now but I think that's from the lupus and the thyroid disease. I take 3 ,2.5 mg tablets once a week and 800 mg of folic acid everyday. I have noticed that I am more tired the day after I take it and if I have not been consistent with taking my folic acid I feel pretty crappy the day after I take it. It has helped me a lot. I hope that this med helps you and that you start feeling better soon!!!
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