Remember Carol well. Scleroderma is a really nasty disease and I can't imagine what she went through.
I am doing OK but lupus has been giving me fits the past 4 years. Liver (now ok) and platelets (not ok). Had heart issues (under control now) last year and nobody wants to work on my body with any type of surgery unless I get my platelets up so I get occasional rounds of high doses of prednisone and IVIG infusions. More next month. Otherwise life is pretty much the same. Polymyositis has been in remission since 2006 so that is a blessing. Every day I get up is a good day. And I still downhill ski despite my age and disability.
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.
Remain Optimistic and you can overcome.