Crazy symptoms. Waiting for diagnosis

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Honey Official
New Member


Date Joined Jul 2018
Total Posts : 2
   Posted 7/30/2018 8:57 AM (GMT -6)   
Hello, I'm new to this site so forgive me if I'm out of place! I've been having a few symptoms that have been giving me major problems, and I just want to know if it sounds familiar to any of you. Now I know you're not doctors, and I understand that completely. I'm just doing some research to calm my mind before all of my appointments.
My Symptoms:
Swollen lymph nodes along left side of neck (about 6 that I can feel)
Stiff neck
Headache/Migraines (mainly occurs after I wake up)
Upper Left Abdominal Pain
Fatigue
Ongoing eye infection (was told it was pink eye 3 months ago, and even though the redness and discharge is gone, my eyelid is still droopy and swollen)

So, I've been to my primary doctor and he was concerned about the lymph nodes and fatigue. He ordered a blood test, CT Scan, and also referred me to an ENT and GI doctor. The blood test came back and my inflammation levels were extremely high (they were also high about 6 months ago..same symptoms then minus the lymph nodes and eye problems). They said my rheumatoid factors were positive which leads them to believe I have some sort of autoimmune disease, so he also referred me to a rheumatologist.

I haven't been to any of the other doctor appointments yet, nor have I had my CT Scan yet. I'm just ready to figure out what it is so I can start medication lol. I feel soooooo crappy!

Any Ideas???

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 7/31/2018 6:32 AM (GMT -6)   
Hello & welcome to Healing Well. Sorry that you are having such a rough time right now. Sadly until you see these specialist & have the appropriate testing it is hard to say what you could have. Just t Ryan not to go down the path of googling your symptoms, that will do nothing but wear a person out. So many different symptoms can overlap several different diseases. I hope your appt with the rheumatologist is not going to be a long wait. Try not to stress too much about a possibility of it being autoimmune because the rheumatologist is the figure that out. Often a patient can have a positive finding on lab testing & it not be autoimmune at all. Hang in there until you see the specialist.

At the very top is a post called Lupus 101, you can click there & read a lot of information about Lupus.
Susie
Moderator in Chronic Pain & Psoriasis Forums
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