Frustration Boredom Anger Alone Anxiety

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Regular Member

Date Joined Jun 2008
Total Posts : 59
   Posted 8/23/2018 5:25 AM (GMT -6)   
So from my subject line you can tell I have been struggling.
I am in a bad flare that has been so long Iha e stopped referring to it as a flare, it’s now a normal.
The only way to stop it is to go to bed and stay there. To rest with abandon, no guilt.
Only when life is so busy how can one do that?
So then there’s a gamit of symptoms.
Allot of terrible fatigue and pain as well as insomnia and cognitive issues.
And don’t forget the fear of how long.....and the frustration and anger and anxiety.....and all the rest
How in heaven’s name does one handle this?

Veteran Member

Date Joined Feb 2014
Total Posts : 2152
   Posted 9/2/2018 10:15 AM (GMT -6)   
How old are you?

Are you living alone?

Are you exercising at all?

When was your last visit to your Rheumy?

Staying in bed is tempting sometimes but you need to get up and about otherwise you will sink into depression and loneliness.
Stopped smoking Jan 2013. Diagnosed Left sided UC, 8th Feb 2014.
Gluten, Dairy, Sulfite, Salicylate, and Histamine intolerant.
Home FMT treatment in July 2016 to ward off reoccurrence of C DIfficile.
Failed Pentasa, Azathioprine and finally Methotextrate due to allergies/intolerance. Taking Humira. Have finally come off Prednisone Yay!!!
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