Four key components that are good suggestions for anyone -
Eat as healthy as possible. Clean proteins, vegetables, and fruits. Keep carbs to whole grains and avoid processed foods. If having a lot of inflammation, read about
foods that cause inflammation and avoid them. Drink lots of water and no much other stuff.
Get deep, restorative sleep. Even if you are exhausted and sleeping 18 hours a day, it might not be what you need. I was sleeping that much when my rheumy suggested a sleep aid (Trazodone) - I thought he'd gone mad. Turns out by using it I sleep 10 hours and feel refreshed.
Get regular exercise. Maybe it's just a walk to the mailbox or down the street, try to move and get your blood flowing. Simple isometric exercises in your chair. Do whatever you can. Try to increase it every couple of weeks, but only by 10%.
Manage stress. Don't schedule 3 things a day, stick to one. If I get groceries today I won't do laundry; Dr's appointment tomorrow, then home for a nap. When flaring, maybe even one thing every two or three days makes more sense. If doing well, maybe two things a day but I rarely manage 3 without needing "zero" days afterwards. If I take a "vacation", I have to remember to give myself an equal number of zero days when I get home!!!
Take meds as directed. If you aren't feeling better, give them time to work, but don't hesitate to ask if there are alternatives.
If you are working, think about
taking disability. You will know when it's time. Also ask your Dr if it's time to take it - it won't happen if your Dr isn't ready to sign off on it.
Listen to your body!
Lynnwood, Dx: 2000, Found HW 2005, HW Lupus/Sjogren's Moderator May 2006-May 2018
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde