I don't know if you have stopped working. Or if you have applied for disability. Those are the first steps I had to take in order to step back out of the chaos and focus on healing.
Sometimes we have to let people know we need help with certain things. When I stopped driving for a while, I had one friend who picked me up for the grocery store every week. And another who helped me get to Dr appointments. Other than that I really didn't go anywhere while my Lupus was bad.
Hope this gives you a couple of ideas as to where to start...
Lynnwood, Dx: 2000, Found HW 2005, HW Lupus/Sjogren's Moderator May 2006-May 2018
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde