Eye twitches, hard time focusing anyone?

YES YES YES !!! holy crap(can I say that?)ah,yes the eye move back and forth at the speed of light!yup!I'M using the bifocal part to read yet when I look up! I have nerve damage(optical I believe) to my right eye,that's where the lupus beast first became physically obvious,mini ulcer looking things,redness,vision changes,etc-I thought I was a weirdo for the rapid eye movement LOL they say that's a sleep thing,SLEEP what's that!sorry off topic,have brain farts too,excuse me!....do both eyes do it ?(yes for me)TOTALLY ****s the kids out! Do you have what 1st looks like pink eye(but not in my case),did you have eye infections as a kid?Just was reminded that I did,but again,just in the right,hhmm,what else(OMG,I sound like a junkie-sorry 'bout that-just so interested,very little information from doctors,and no one I personally know has this) when it happens,I pull my head back(trying to focus)thinking,okay that's weird,not cool,not cool! WOW,does it freak you out (''eye flashes''?) how long has this been going on for you? I am somewhere around 23 yrs,it was middle school,how weird my husband thought I was off my rocker,not a nut bar,just try trying to explain it to the doctor-you know the deer in the head lights look ...hehehe,sorry Very imaginative,could picture it!....looking forward to getting to know more of your situation,these gals are great,they sure know how to pick you up when you are down,thanks for posting,very pleased to meet you,take care!
crystal

And yes, it's both eyes at the same exact time. I dont get pink eyes or anything else, but did have Optic Neuritis when I was a child and was completley blind in both eyes. I lost my vision for almost a year and thanks to good ol' prednisone, we were able to save my right eye almost completely. But the left eye is shot! Yes I do get flashes white flashes and dark spots too. Glad to hear I'm not the only one. You are the first person that I know that has this too! Thanks for your response. It helped A LOT!!! I look forward to hearing about some of your querks as well. Maybe we can compare! Hehe! Well it's late, but my sleeping schedule is always out of wack. Took a pill to knock me out so hopefully it'll kick in soon. I will keep in touch. Any other information about the eyes would be really helpful. I get all sorts of strange eye things that just don't seem quite right. Like there's a glitch in my brain that is connected to my eyes. Which of course would be the Optic Nerve but I think there's more to it than that. I am wondering if the Lupus is once again attacking the nerves. I would like to hear about your lab results too! I have had no one to compare my results with and am a bit confused. So it you get the chance, maybe you can help me with that too! Wow! That's so great! Not that you have the same problem, but that someone else has the same problem that I can disucss it with. Who knows, maybe we have more of the same symptoms. I look forward to hearing from you. You sound super cute! I love your sense of humor. It's just like my husband's, very imaginative. Keep in touch.
Thanks, Jyllian

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SLE (Lupus) Dx'd - Nov. 2005, Raynaurd's - Dx'd Nov. 2005, GERD - Dx'd 2006, Fibromyalgia - Dx'd 2005, PCOS - Dx'd Jan. 2007, Migraines - Dx'd 1995,
Optic Neuritis - Dx'd 1984,

Currently taking - Plaquenil 200mg, Prozac 20mg, Spirnolactone (Aldactone) 50mg, Vit. A

Occassionally take - 1/2 500mg Vicodin (2-3x/wk), Maxalt as needed for Migraines,
Clonazepam 1mg as needed for sleep and muscle pain,
Relafen 500mg as needed for pain, Pepsin for Gerd
Prednisone (for emergency use only)

Hi starzphalling,
I was hoping there was someone out there with the same prob. Well I am 29 years old. I became chronically sick at 26 but really have been sick my whole life. In and out of the hospital all the time.

The eye twitches didn't start until this last year. I know this sounds crazy....but I assumed it had to do with drug use as a child. Don't get me wrong, I was never an addict. But I did have my share of experimentation when I was in young. Haven't touched drugs since I was 16 (for the record, just so you don't think I'm a drug addict) If you guys have never done any drugs, then I guess I could rule that one out! What are your thoughts? Maybe it is an age thing but I dont think so. No offense! But it's nice to meet some girls around the same age. I think the disease has different impacts on us than it does on someone older. Don't get me wrong, it impacts US ALL!!! But we are at a different stage in our lives and it effects a lot more social functions. I think it's also harder to accept being younger because you don't expect to have physical limitations so early in life. And then of course you worry about what the future brings if you feel this awful in your twenties! Not to take any credit away from someone a bit older. We all have our battles. Well good luck with your Dr. appt. I will be praying for you and would love to hear your stories. Let me know what yourDr. says about the eyes, and I will ask my Dr. and let you know. We can compare notes. :) Hehe! Keep in touch.
I'll be thinking of you. Jyllian

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SLE (Lupus) Dx'd - Nov. 2005, Raynaurd's - Dx'd Nov. 2005, GERD - Dx'd 2006, Fibromyalgia - Dx'd 2005, PCOS - Dx'd Jan. 2007, Migraines - Dx'd 1995,
Optic Neuritis - Dx'd 1984,

Currently taking - Plaquenil 200mg, Prozac 20mg, Spirnolactone (Aldactone) 50mg, Vit. A

Occassionally take - 1/2 500mg Vicodin (2-3x/wk), Maxalt as needed for Migraines,
Clonazepam 1mg as needed for sleep and muscle pain,
Relafen 500mg as needed for pain, Pepsin for Gerd
Prednisone (for emergency use only)

Hi,

has anybody got any new information about this eye twitching?

I was diagnosed with Lupus 23 years ago (I'm now 30), and have quite a few other complications, including Sjogren's (dry eyes & bright red rims). I have taken Plaquenil for about 8 years now (twice a day) but have managed to avoid Prednisilone apart from 6 months during pregnancy.

The week after my son was born (3 years ago) I started getting shaky eyes. My eyes twitch from side to side at such an speed I can feel them moving. My vision goes totally blurred and I can't focus on anything at all - nothing. AT first it was maybe one or twice a month for a few seconds. But now, 3 years later, it's happening on an almost daily basis and sometimes can last for 5-10 minutes. It's very distressing.

When it happens I basically can't see anymore - i have to stay where i am and wait for it to pass. Last week it happened whilst I was crossing teh road, and it was terrifying cause I suddenly couldn't tell how far the traffic was.

Does anybody have any information on what it might be. It sounds like we have the same thing and to be honest I'd be relieved to know it's SLE related and not something worse!