Thank you so much, all of you for all of the replies and ideas. Babs, you are right that it is probably hard to tell if these kinds of headaches are migraines or lupus headaches. I never had these kinds of headaches before having lupus though, so who knows. It's interesting that a lot of us have the same types of headaches. MomofC&C, thanks for reminding me about
dehydration - I often forget to drink enough and that could be part of the problem and I also didn't think about
the weather. We all of a sudden got warm, humid weather with rain and thunderstorms. It's supposed to be like this for the next week at least.
Daine, I might try the advil liquid gels. I'm not supposed to take NSAIDS on a regular basis because of protein in my urine and stomach problems, but I do take them when I get menstrual cramps for just a short period of time. Like a lot of you said, a dark, quiet room and some type of pain med seems to be one of the only things that helps.
Today was a crazy day - my son's JRA flared up really bad so I had to get him from school and I drove him 1.5 hrs (one way) to his doctor to get labs done. Before I left, I felt a headache coming on so I took an extra 2.5mg of prednisone (for a total of 10mg) thinking about
what Lynnwood said about
increasing the prednisone and I took some Aleve and it seems to have stopped the headache in its tracks and the extra pred gave me the energy to get my son to and from his doc. I'm betting the prednisone helped.
And Crystal, who knows, as a last resort, if these headaches don't go away I'd try some moose antlers and rhino hoof extract, lol.
Needless to say I will talk to my rheumy when I see him next month or I may have to call him if these headaches continue on a regular basis. It's interesting because when my son's JRA flares he gets the same kind of headaches. I asked him today where they hurt and it was like he was describing my own headaches.
Thanks again everyone. I'm going to make sure to stay hydrated and I know I have my rheumy's permission to be at 10mg of prednisone if I need to be.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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