heavy metals and here comes the malar rash....i think.

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Date Joined May 2006
Total Posts : 149
   Posted 3/21/2007 8:47 PM (GMT -6)   
i've decided to do go ahead and get tested for heavy metals.  i read some research where mice with genetic predispoitions to lupus developed the disease when exposed to heavy metals.  i have the genes for it but i don't have the bloodwork for it....so....i might as well. it will take another pay day or two before i can do it, because insurance won't cover it (it's a urine test that i have to send to a lab in paris).
also, if it IS heavy metals, i can treat that and maybe get rid of some of this.  the test is about 400$ but if it comes back positive, then insurance will cover the very expensive and long term treatment.
i was looking at picture of me trying on my wedding dress a few months ago, and i don't know why i didn't see it before, but there is the red nose..with the red going over my cheeks...just how i remembered it from last summer. like a good sunburn. then, tuesday morning i got to work. it was 60 degrees outside and i had on a t-shirt and jeans (obviously not warm). the mom of the little boy i tutor asked if i needed water or a fan because i looked over heated.....i had noticed the red across my face that morning but didn't think about it.  put i went and looked in the mirror and there it was.  thankfully it isn't red tonight.  can this come/go some what? 
i am going to start using a steroid cream again on my fingers, it helped with the little blood clots before, and they are still showing up, one by one every 7-10 days, instead of a huge group of them all at once like before. i hope that with the warmer weather that the ranauds will be a little better and perhaps these painful knots will start to go away...assuming that it is related to the ranauds.
lupus or something like it

Regular Member

Date Joined Feb 2007
Total Posts : 235
   Posted 3/21/2007 9:30 PM (GMT -6)   
I was diagnosed in January,and never even knew of the rash until then,I thought it was my coloring or the sun as I was outside a lot year round.
I was diagnosed with discoid( wolf-bite).
I ran into a former neighbor on the weekend,he is in the medical field,and asked what the results were,when I told him,he said that he noticed to malar rash for several years-I asked why he never mentioned it to me,and he said he wasn't totally positive and that's why he kept telling me to see the doctor...no doctor ever mentioned it either until January.
Weird how this can be present one day or week,and gone the next.
It never used to burn before,at least I never paid attention to it,I had been told it was pre-menopause symptoms/hot flashes...the fevers were actually NOT menopause related! here I sat thinking it was hot flashes!
I guess that's what makes this hard to diagnose,I wish I had seen doctors that had more lupus knowledge,maybe I would have had a chance to know more than I do now. guess that's why the other stuff they gave me never worked.I wonder if it could have made it worse,it is all still pretty new to me.
Did look at pictures recently as well,never thought anything of it,I thought it was our camera-I am ,officially,a weenie!(great,now I have the hot dog song in my head!)
all i know is mine comes and goes,I look like a tomato,and now it goes all over,not just on my cheeks and nose,my whole face and it burns really bad,and my face looks a bit swollen,who knows how it will look in an hour,it usually goes really gross and painful,then disappears.
I just feel like ''side show circus act''-whoo,that's the user name I should have picked!!LOL crystal
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