Hi. I was diagnosed with AVN in both hips back in November. I have had lupus for 17 years now, so the steroid use is what has caused the AVN. And yes, it hurts!!! I have been on crutches and am awaiting surgery. The first surgery is April 10th, then they will do the other hip on May 29th. They are doing a core decompression with fibular graft, to both hips. (Drill out dead bone in femur head, and put in bone graft from my fibular bone in leg) Doctors don't want me to have hip replacements since I am still pretty young (37 years old) and the hips only last 10-15 years. Wish I could do nothing, but it is pretty far advanced and may collapse anytime. Then I would HAVE to have hip replacements.
As for pain, I use Voltarin and Darvocet as needed. And I have been swimming almost everyday- which has really helped. Hopefully that will help me heal from my surgeries too, cause I am so scared!! Lets just hope my lupus stays quiet while I fix my hips!