Hi Sue, My hemo/oncol. told me to have the sleep test done. My PCP set it for me. I went to the hospital at 9:00pm and they put me in one of their sleep study rooms for the night. It was a very comfortable room done in blues and it even had a real bed with blue sheets and comforter. It had very soft lighting. All of the equipment was behind the bed's headboard and all of the computers and monitoring t.v.'s and the techs were in the next room. I was told to bring my own pillow and p.j.'s. The techs put electrodes on my legs, heart area, eye area, and over my head in various places. Two straps were wrapped around my torso. They didn't bother me at all. I thought I slept pretty well, but I was told that I had over 200 sleeping incidents (not breathing for 10 secs) and 8 times I completely stopped breathing altogether. They said my legs started moving to make my body breathe again. It was very scary to hear about
I went for a second sleep test, this time with the CPAP machine. I had all of the same electrodes and monitoring straps. They fitted me with a face mask the looks like the kind that fighter pilots wear and attached me to the CPAP machine. The machine pulls air in from the air around you. It pushes air into your airways to keep the soft palette
open and obstruction. That is why I have to have one. It's the most common problem where people have to have a CPAP. I didn't need additional oxygen, so no Ox tank for me. The CPAP machine that I'm getting tomorrow will have a humidifier and air temp. control. I think I slept well that night with the CPAP even though the techs were comming in the room to adjust the mask and air pressure. I am told that there is a short adjustment period to sleeping with a mask on and the air sound. I am also told that once you get used to the machine, you never want to sleep without it. Also I was told that it will take away alot of fatique, mental fogginess and I'll have more energy. My obstruction is so bad that I have been referred to an ears, nose and throat specialist/surgeon to see if I can have my obstruction surgically removed....that would be some of the soft pallet and tonsills. That I've been told is painful to recover from. Sometimes it improves breathing, but you still need the CPAP. I've been told that some people are glad to have had the operation, some wish they never had it done. So I'll see what the specialist has to say and decide.
I hope this information has been of help to some. It is a very common problem that is often over-looked by dr.'s, my own PCP said that. It is is easily compensated for by using a CPAP machine. It's main reason for failure is that people don't want to sleep with the mask on. There are different kinds of masks to try.....you can be fitted with one that works for you and you might have to try a few. If you think that you might have sleep apnea, talk to your PCP about
it. I was told that there was a connection(my rhuemie) between fibromylagia and sleep apnea and auto-immune diseases like lupus and R.A. If anyone else has something to share about
this, I would really be interested in what you have to say. I'll keep you all posted step by step on this. All I can say is "who knew?" If this machine can make me feel better during the day, then why not?
Peace be with you and blessings, Cecelia
Nesting is healing, Live well, blessings, peaceful harpist
Lupus(SLE & Sub-Cutaneous),chronic pain,degenerative disc disease,hypothyroidism,severe anemia,luekopenia,asthma,R.A.,Raynaud's, Sjorgrens's,Rosecia,vit. D and iron deficiencys,fibromyalgia & sleep apnea.Too many meds to mention. Yoga...Meditation... Music