Lupus and the environment

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New Member

Date Joined Apr 2007
Total Posts : 1
   Posted 4/8/2007 9:11 PM (GMT -6)   
My first post here.
My husband and I have both been diagnosed with connective tissue diseases within the last year. We are both being treated for lupus and both taking plaqunial. We both get flair ups, fatigue, and are in a lot of pain.
I am 29 and my husband is 30. I think what has happened is very strange, and we both started to get sick after we moved into our home 2.5 years ago.
We are seeing the same doctor who said it was unusual for this to happen, but he said studies have found that lupus has never been linked to the environment.
Does anyone know if this is true? I find it hard to believe that we both randomly have lupus and were both diagnosed within less than a year of eachother.
This really sucks.

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 4/8/2007 9:34 PM (GMT -6)   
Hi Uggs,
   Welcome to the forum. I'm sorry to hear that you and your husband both have Lupus. That does seem odd that you both have developed it in such a short time. I have never seen anything that suggests lupus could be linked to environmental factors myself. Someone else may come along that may have.
  I'm sure there are alot of environmental factors that are bad for ones health. Do you live near a plant or factory that manufactors any dangerous chemicals? Has anyone else in your neighborhood gotten sick as well? This just seems rather odd or a very unfortunate coiencidence.
  I'm glad you found us and shared your story. I wish I had more advice for you. Hopefully, some else will know more about this. Please feel free to ask all the questions you want. You will meet alot of very friendly, caring people here.
  Take care and keep us updated on this. I look forward to getting to know you better. You and your husband will be in my thoughts and prayers.
 Co-Mod: Lupus Forum
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JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 4/8/2007 10:35 PM (GMT -6)   
There is some evidence that lupus and other AI diseases can be triggered by chemicals.  I don't believe that there is any conclusive evidence and proving a trigger in any individual case is difficult if not impossible.
If you do a google search of lupus chemical triggers you will find a number of articles on possible triggers.  That is not the whole story even if you can find a link.  Your immune systems are vulnerable to the trigger and that is probably a combination of genes. 
It is known that things like cancer, viruses, some meds, and possibly stress can trigger AI diseases.  Possibly there is some unknown chemical agent in your house that caused your problems...or possibly it is just an incredible coincidence.  The reality is that most of us will never know why we got sick.  I was seemingly healthy for 62 years and got mctd out of the blue....or so it seemed.  In retrospect there were signs of it at least 17 years earlier.  These diseases are maddening.
Hope you can get some answers but if you do you will be the exception.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's syndrome.
Meds: prednisone (9mg & tapering), 150mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller

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