I know I have not been here for a while but so much has been going on that I have had to stay away. I can see where it has taken a toll on me too. I went to the Rheumie for a bunch of tests and feel like they keep finding something new all the time. Now it is that I have severe vitamin D deficiency. On scale of 1-100 mine is 13
I have to start Vitamin D at 50,000 iu and I know this is going to make me feel really sick. The thing is my body is not happy with change and this will be good for me but at first we all know how this makes us feel while our body gets itself out of toxic mode. LOL!! I have to do this ASAP or I may end up in the hospital for IV treatment which at this point I don't care because I am so angry. I cannot go in the sun, and now I want to get my Vitamin A tested along with Potassium and Magnesium checked. And also Vitamin K.
I just get sick of this because my lupus labs come back negative and I still have issues with Sjogren's Syndrome, Porphyria, etc. Anyway sorry to complain. I am not looking for sympathy, just venting.
Have a good day everyone.
sle 99 w/cns & autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 99, fibromyalgia 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency severe 4/07. Meds are baclofen 40 mg, prenatal tabs, calcium, potassium, vit D prescript
ion 50,000 iu, qvar, albuteral, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, artificial tears, stuff for the sjogrens.