((((Hugs)))) Carol. I read your response on my earlier post - thanks so much. Like everyone else here has said, you are a very sweet and kind person and have been so supportive to everyone here. I just kept nodding my head while I was reading your post about
feeling like you have lost so much of your life and that you feel like a bystander instead of a participant - you basically said so much of what I have been feeling lately.
I imagine the anniversary of your husband's death has made everything you have been feeling that much more difficult. I can't imagine going through something like that, and then trying to battle your illnesses too. You have every right to have some moments of self pity.
I think I've finally realized that there are going be times when this disease gets me down and I'm going to feel like cr*p. How can it not get to you once in a while? I think the grief of all I've lost is one of the hardest things to deal with. Luckily we all have each other here and have wonderful built in support and understanding.
Please don't be embarrassed about
your post - I think it's good that we can share these things with each other and help each other out. It helps you know that you are not alone in this and there are other hands reaching out to yours in the dark.
I'll say some prayers for you during this difficult time of year.
Love and hugs
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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