Posted 4/18/2007 5:04 PM (GMT -6)
Hi Misscali, sometimes my flares gives me a warning, like mouth sores but usually there is no warning the increased fatigue and joint pain just hits me like a ton of bricks. Have a safe trip and have a great time. Be sure to take good care of yourself and like Hippi said, listen to your body and rest when needed!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)

Posted 4/18/2007 5:45 PM (GMT -6)
ok i will definately make sure to take care of myself and i will still be in contact while i am there if i have any problems!

also, i have never had mouth sores before but once in a while ill get something like a tiny "bubble" or something in my mouth. if i brush it, it seems goes away immediately though. is that what a mouth sore is??
Posted 4/18/2007 7:27 PM (GMT -6)
unfortunately my mouth sores don't go away so quickly, they like to hang around for 2 weeks or so. You would know if you've had one, they are usually found inside cheek, gums, tongue and roof of mouth. They are white with a red (swollen) area around it. Some can be painless but I think most are painful, depending on where they are located. I hope you don't ever get them!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)

Posted 4/18/2007 8:43 PM (GMT -6)
Hi Everyone - I just signed up today - its always great to talk to people with a similar condition because no one understands how I feel (except all of you!).  I've been reading your posts - I don't have mouth sores but I do get "sore mouth" - anyone else experience that from time to time?  Here another couple of questions that I am SO curious about - do any of you suffer from boils?  What about fly bites - any type of reaction?  I get quite a reaction to mosquito bites however, I am severely allergic to bee/wasp etc stings so I don't know if this is related to that allergy or the Lupus.  I know this post is off topic but since I have a captive audience... lol
Sue
Ps.   I get tired too redface - I just made a decision last week to slow down at work a bit and to listen to my body too!!!
Posted 4/18/2007 9:00 PM (GMT -6)
Do you mean sore mouth kind of like teeth pain (whole mouth or the funky teeth pain feeling) or do you mean swallon gum? 
I have swallon gum problem and sometimes I have teeth pain problems.  This is due to the medication (prenisdnole)
Mouth sore, as jhmom said, it is part of lupus flare.  I am currently getting it.  It is exactly as jhmom (Stacie) described.  It can take two weeks for the pain to go away, but it can take longer time for it to heal 100%.
a reaction to mosquito bites, bee sting/wax-->this is more like an allergy, not lupus.
 
Posted 4/18/2007 10:51 PM (GMT -6)
Sandspoker, welcome to the forum! I've never had a "sore mouth" so I can't help you with that. I hope you find that you're tiredness subsides a little when you slow down at work. The less I do, the better I feel. It's hard on the social life, but what is a social life when you always feel bad! Sounds like you're on the right path. Tell us more about yourself.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Posted 4/19/2007 2:16 PM (GMT -6)
I wish I could articulate this better but I know a flare is coming on when I feel like my body is buzzing all over. I then develop a fever and terrible fatigue and dizziness. Sometimes it lasts a day or two, sometimes longer. This was actually one big clue when I first got tested.... for years I was having flares and not even knowing I had lupus. My hip also hurts much worse during one of these episodes as well as my hands and the tops of my feet. My heart also pounds and my pulse elevates.
Posted 4/19/2007 2:25 PM (GMT -6)
The times that I did go into mild flares (I have had a few false alarms), I felt just like I did when I am about to get the flu. Very weak, lightheaded, and drained and now I wonder if its the flu or a flare (neither of them sound better than the other to me).
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


http://www.healingwell.com/donate

Posted 4/19/2007 5:14 PM (GMT -6)
I am still not under control with this disease so I feel kind of bad most of the time. but I know one really huge flare I had I started getting chills. Than came a fever. Than came the joint pain and the agony. crying and moaning in my sleep. My temp was about 103 and I thought it was the flu. but it wasn't. Like other said listen to your body. Also I have noticed that the theme here is if you do to much or get stressed out or have a change in medicines that can bring on a flare. So you should try to Not get to tired, to stressed, listen to your body if you are tired than sleep or at least rest. Take your temp several times a day. I think as you become more formiliar with what your particular body can and can't tolerate you will know what to look out for.

hugs
carol
God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , Opana ER for pain, Evista for osteo,. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 

Posted 4/19/2007 6:18 PM (GMT -6)
Hi Pat and Omega - Thanks for replying -
I'm a 41 yr old female who had "something" for a long time.  I guess it was after a summer of really bad arthritus that my doctor asked me if I wanted to get to the bottom of it and I said yes.  After my first visits with a rheumy (catching on to the lingo here...lol), I was diagnosed with Raynauds.  Then my Lupus indicators took off.  My sister too has lupus - she was diagnosed 30 years ago when the disease was relatively unknown (imagine how long it took them to diagnose her).  I suffer from chronic pain - one of the hardest things about this disease is the fact that I look fine so people just don't understand that I am sick (I've been trying to get through to my husband that I need his help).  In the past, I've had bouts with hepatitis, pneumonia, and pleurisy.  I'm not sure if any or all are associated with the disease but thought I would include this fact.  Like I mentioned, I am learning to rest more and I've had to give up some activities that I enjoy because of the pain.  Such is life though I guess...
Btw, I read another list of indicators that included reactions to fly bites - this alternate theory was based on the fact that Lupus has an effect on the skin - that's why I asked the question.  That alternate theory made me wonder about the boils...

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