Long time no see, LOL. Well Monday I am due to see an endocronologist. My Rheumie is concerned about
why I am not metabolizing Vitamin D, well duh, I am allergic to sun!!!
But the gelatin caps they come in include artificial dye since Vit D is not to be exposed to the sun, like me. So I had to call the allergist to approve me taking the Vitamin D and I have to poke a hole in it in the dark and squeeze it out of the gel capsule. What fun. But this doctor might be able to give me injections to take too but we shall see. At this point what is a shot once a week for a month and then once a month? To me nothing after all I deal with just one more thing
So we shall see what kind of tests he runs and what he says and then go from there. I am still getting sick from the sun and have to go back on the plaquenil which causes more sun sensitivity but what do you do? To balance Porphyria and Lupus with Sjogren's certainly has its challenges. Well until later. I hope you all are well and I will probably be back a bit more when school is out.
Love to all,
sle 99 w/cns & autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 99, fibromyalgia 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency severe 4/07. Meds are baclofen 40 mg, prenatal tabs, calcium, potassium, vit D prescript
ion 50,000 iu, qvar, albuteral, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, artificial tears, stuff for the sjogrens.