Kitty, that is such great news - I'm so happy for you. Like the others said, just enjoy these good days. Maybe your lupus was caught early enough that the plaquenil can really get things under control for you and keep it under control. Just remember that just because you are feeling better that it doesn't mean you don't need your meds - you are feeling better because the meds are doing their job. I have read some heartbreaking stories here of people who thought they could quit their plaquenil and then ended up very sick and flaring and had a hard time getting things back under control. Your doctor can work with you and help you know if you are going into remission and what to do regarding your meds.
I know what you mean about
the fantasy about
not really having lupus. I've thought that myself on some of my really good days - it's a nice fantasy to have sometimes. I like how you said you will quietly celebrate. It sounds like you are doing everything you need to in order to avoid a flare. I am praying that your good days continue and that you are headed for remission.
Take care and keep us updated on how you are doing.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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