Carol, my temp is a lot like yours. Before getting lupus I always ran a lower than normal temp (about
97.7) and still do when I don't have a fever. After getting lupus and before I started on prednisone, I ran a fever almost everyday ranging from 99-100.5 and sometimes higher. SInce starting prednisone lat last summer I have less frequent fevers, but can usually tell by how I am feeling when I have a fever. During a flare I almost always get low grade fevers. I think it was Lynnwood who explained some of the lupus fever to me. A lot of it seems to be due to inflammation in the body caused by lupus. I know that both you and I have also experienced very low temps every so often and I have no idea why that happends. A couple of times when I have been really sick and expected a fever, my temp has been down in the 95's or 96's.
As far as naps go, my answer is yes. Again, before I started prednisone I couldn't get through a day without a nap and now I can manage some days, but then I'm exhausted by about
4 or 5, so I still take almost daily naps. I honestly don't know how I worked as long as I did - fortunately it was part time. You are right that it is hard dealing with all of this with little kids, but it was even harder when they were younger. When I frst got sick, my daughter was only 2, so it was really hard then. Now both kids are in school and I'm not working so I can get some rest during the day.
I think a lot of us have insomnia. There is no way I could sleep without meds and even then I have some trouble sometimes. If youre having trouble sleeping even with heavy duty meds you might want to ask about
having a sleep study. I know you are probably sick of doctor appointments, but you might get some answers regarding your insomnia.
I hope you were able to go back to sleep this morning and get some rest.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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