Posted 5/2/2007 6:19 AM (GMT -6)
this is kelly..i also have the lupus kidney now start to deteroriate..
my creatine now is 1.7mg/dl..which is abnormal high now..
n my email add also as above..
please contact me..thank
Posted 5/5/2007 2:49 PM (GMT -6)
so i got my biopsy report back last week, and its not good, the lupus is back and its in the new kidney. doc said that only about 10% of transplant patients with lupus actually have the lupus return, and of course i am one of the lucky 10%, so needless to say this sucks, they upped my prednisone from 5 mg to 60 mg and we all know how fun that is, and they added another 500mg of cellcept, not to happy with the this fact, i thought that maybe i would get to be one of the lucky ones. and lori thanks for your support, i want you to know that i had my pity party last week and i do feel better now, thanks for all your encouragement and i was glad i had someone to talk to that has some understanding of what its like, cuz i love my family and friends but telling me that all i have to do is take more pills is not the best way to approach me. so thanks a bunch.
Hugs and prayers,
diagnosed in May '95 with lupus, nephritis, hypertension,hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D

Posted 5/5/2007 7:24 PM (GMT -6)
Hi Suzanne:

I'm so so sorry to hear that the lupus is attacking your new kidney. It's a shame that you're in that rare 10% and will now have troubles. I'll keep you in my prayers, I hope that they can get things under control real soon.

(((((hugs))))) I know that 60mg of pred is a real pain to deal with. I hope that you'll be able to cut back on it real quick. Don't give up hope, keep at your doctors and let them know that you need them to find a treatment plan for you. Wishing you the best, and please keep us updated on how you're doing.

Take care,
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

Posted 5/5/2007 8:43 PM (GMT -6)
Hey Suzanne,
You're still in my prayers and I think of you often. Take care,
Posted 5/6/2007 12:41 AM (GMT -6)

hi suzanne...

i hope that your kidney will be alright...

and of course, i sure will pray for you...

btw, i am still able to work as full time teacher now...

May god bless you, take care...


yeah   yeah
Posted 5/6/2007 7:20 AM (GMT -6)
Suzanne, I'm so sorry the lupus has affected your new kidney. I pray that the increase in your meds helps. You will continue to be in my prayers.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Posted 5/6/2007 6:15 PM (GMT -6)
I am so sorry you are in the 10% and you have to take more meds. I have grow so tired of pills and injections. If I could I would walk away from treatment but not being treated is actually worse than the pills and such so I am stuck. I will pray for you. Blessed be.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD

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