Posted 4/21/2007 6:19 PM (GMT -6)
Hi Sands,

Be welcome, welcome to the group. I have MCTD which is different from Lupus (they let me hang out here anyway ;-) My symptoms (stiff, unmovable fingers, .. pain in joints) are always worse in the mornings. Sometime you wonder how it is that you are going to get out of bed. I don't know if it gets better through the day because of meds or not.

I'm in Central NY and I'm 52 years old. I was only diagnosed about a year ago (not quite) and I still have my job and I'm feeling pretty good now that my meds (Imuran is the lifesaver) have kicked in. I was a med avoider before really needing them.

Let us know what meds you are taking and what's going on. We'd love to help.

Stay Strong,
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg wish I could taper), Imuran (2X50mg), Prilosec (20mg), Prozac (off now)

Posted 4/21/2007 6:36 PM (GMT -6)
Hi Sands:

My symtpoms list would be way way to long to list. I've got all the usual things and then some of the not so usual ones. I'm 42 and live in Maryland with 1 child 14 yrs old. Hubby is getting ready to retire from the US Air Force this year.

Welcome to the forum, looking forward to getting to know you.

Take care,

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

Posted 4/22/2007 9:16 AM (GMT -6)
I guess I should have said something about myself too :)...
I am 41 and live in Toronto, Canada. I find that although I am stiff in the morning - I am always worse by the end of the day - I sometimes need assistance just to get off the couch because my knees are just too sore. The doctor wants to put me on prednisone but I don't want to take that drug at all (the weight gain aspect is enough to make me run the other and I am trying to find an alternate. My GP (he is an absolute god send!!!) said there was a drug that was both a anti-depressent and a pain killer - I'm going to go and see him on Monday to see if he wants to give it a go. I too have Raynauds - that was diagnosed 1 1/2 years ago. I never connected the light sensitivity to Lupus but my GP told me to go and read up on Lupus and that's where I discovered it. I've had the pleurisy too. I also have problems with my arteries - they are clogged and I don't have any cholesteral issues so I don't know... :(
For me right now, its my rib cage (that's what the doctors think anyway)... I cannot take a breath without pain so I take pain killers for that right now. I get bummed out sometimes too. I have a real hard time with not having the energy I used to have. I've pretty much stopped entertaining (I used to have dinner parties every weekend) because trying to prepare the dinner pretty much wipes me out for the rest of the I think that when I go to see Doc on Monday, I'm going to ask him if both my husband and I can make an appoinment together so that he can get a grip on whats going on here. He just doesn't get it and expects too much from me. He was telling me that he met a guy at work who's wife has something similar to me (he didn't know what she had but he said our symptoms were eerily similar) and that this guy was telling him how much he has to care for her. I'm hoping that they will continue to talk and that it will make him more understanding.
Sorry to keep going on but it feels so good to vent.... lol

Here's to a happy Sunday!!! We hope!!!

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