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Regular Member

Date Joined Apr 2007
Total Posts : 104
   Posted 4/21/2007 8:28 AM (GMT -6)   
:-)  Hi Everyone - As you all know I'm new to the forum but I'm curious about everyone's symptoms and if any of you notice that some things happen in the morning (I can barely type this note this morning because my joints are so sore), afternoon, evening etc... The other thing I was wondering about is the symptoms that you think might be related to Lupus but aren't on the "list" - make note of anything you think might be related - we may be able to discover that we do share some other symptoms.  One last thing - where is everyone from and our ages.  If I'm getting too personal, well just leave out what you don't want to answer... lol 

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 4/21/2007 11:02 AM (GMT -6)   
Hi sandspoker,

I'm afraid my list of symptoms is too long to write down at the moment because I have a bad headache (sinus). My symptoms come and go, and I think some are due to the meds I take, others lupus, others RA, and others sjogren's. I will say my symptoms are pretty typical. Mornings are the hardest for me because of pain and stiffness. Headaches usually come mid afternoon. I'm 58 tomorrow and am from Oklahoma. Welcome to our forum.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 4/21/2007 12:39 PM (GMT -6)   
Hi Sand, I am Stacie from Georgia welcome to the group! Lupus is a disease of 1000 faces and no two people have the same symptoms. The most common symptoms of lupus are joint pain, fatigue, headaches, sun sensitivity, malar rash, Raynaud's (cold hands and feet) & mouth sores. Like Pat, my list is a little too long to list here but what I listed above are some of my symptoms. Here is a link to a list of symptoms: ]url]

Feel free to ask more questions. Take care

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)

Veteran Member

Date Joined Jan 2007
Total Posts : 607
   Posted 4/21/2007 12:54 PM (GMT -6)   
Yeap. Everyone's symptoms are different, and I hv tones of them. And they are comes and go. Yours should be stiffness. I have those too, especially worse during spring time. I have morning flush, malar rash (only when flaring), raynaud, fatigue, joint pain, mouth sores, vasculities (had it but gone now), polymysoitituts (may spell wrong--I had this b/4, but gone), headach/migraine, fatigue. Some I don't even remember. It's too many and always changed.

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 4/21/2007 4:32 PM (GMT -6)   
Hi Sand,
   Welcome to the forum. I'm 49, live in Alabama and I've had lupus for 30 years. As far as lupus, I usually have the basic symptoms normally. I have had some organ involvement of the lungs, heart, and CNS. I have other overlapping diseases that causes other symptoms as well. Take care and ask all the questions you want.
 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 4/21/2007 5:01 PM (GMT -6)   
Hi. I live in Iowa and I'm 40. I also have a long list of symptoms and am too wiped out right now to list them. I seem to get my worst pain in the morning and night, but sometimes it can stay pretty bad throughout the day. That's a good question about symptoms that aren't on the list. I'm sure I have some, but I'm too tired and foggy to think of them right now, LOL. If I think of them later I'll let you know
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Co-Moderator: Lupus and CFS Forums

Regular Member

Date Joined Jan 2007
Total Posts : 279
   Posted 4/21/2007 6:19 PM (GMT -6)   
Hi Sands,

Be welcome, welcome to the group. I have MCTD which is different from Lupus (they let me hang out here anyway ;-) My symptoms (stiff, unmovable fingers, .. pain in joints) are always worse in the mornings. Sometime you wonder how it is that you are going to get out of bed. I don't know if it gets better through the day because of meds or not.

I'm in Central NY and I'm 52 years old. I was only diagnosed about a year ago (not quite) and I still have my job and I'm feeling pretty good now that my meds (Imuran is the lifesaver) have kicked in. I was a med avoider before really needing them.

Let us know what meds you are taking and what's going on. We'd love to help.

Stay Strong,
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg wish I could taper), Imuran (2X50mg), Prilosec (20mg), Prozac (off now)

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 4/21/2007 6:36 PM (GMT -6)   
Hi Sands:

My symtpoms list would be way way to long to list. I've got all the usual things and then some of the not so usual ones. I'm 42 and live in Maryland with 1 child 14 yrs old. Hubby is getting ready to retire from the US Air Force this year.

Welcome to the forum, looking forward to getting to know you.

Take care,

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

Regular Member

Date Joined Apr 2007
Total Posts : 104
   Posted 4/22/2007 9:16 AM (GMT -6)   
I guess I should have said something about myself too :)...
I am 41 and live in Toronto, Canada. I find that although I am stiff in the morning - I am always worse by the end of the day - I sometimes need assistance just to get off the couch because my knees are just too sore. The doctor wants to put me on prednisone but I don't want to take that drug at all (the weight gain aspect is enough to make me run the other and I am trying to find an alternate. My GP (he is an absolute god send!!!) said there was a drug that was both a anti-depressent and a pain killer - I'm going to go and see him on Monday to see if he wants to give it a go. I too have Raynauds - that was diagnosed 1 1/2 years ago. I never connected the light sensitivity to Lupus but my GP told me to go and read up on Lupus and that's where I discovered it. I've had the pleurisy too. I also have problems with my arteries - they are clogged and I don't have any cholesteral issues so I don't know... :(
For me right now, its my rib cage (that's what the doctors think anyway)... I cannot take a breath without pain so I take pain killers for that right now. I get bummed out sometimes too. I have a real hard time with not having the energy I used to have. I've pretty much stopped entertaining (I used to have dinner parties every weekend) because trying to prepare the dinner pretty much wipes me out for the rest of the I think that when I go to see Doc on Monday, I'm going to ask him if both my husband and I can make an appoinment together so that he can get a grip on whats going on here. He just doesn't get it and expects too much from me. He was telling me that he met a guy at work who's wife has something similar to me (he didn't know what she had but he said our symptoms were eerily similar) and that this guy was telling him how much he has to care for her. I'm hoping that they will continue to talk and that it will make him more understanding.
Sorry to keep going on but it feels so good to vent.... lol

Here's to a happy Sunday!!! We hope!!!
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