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New Member

Date Joined Apr 2007
Total Posts : 16
   Posted 4/24/2007 5:30 PM (GMT -6)   
Hi.  New to this forum and the Crohn's forum.  I have been diagnosed with Crohn's disease, Tumid lupus, connective tissue disease, and now possibly SLE.  I have been getting mouth sores on the roof of my mouth that are very painful.  Was wondering if anyone else had this problem and what they do for relief.  I have been using Prevention mouthrinse and it helps some. 

Veteran Member

Date Joined Jan 2007
Total Posts : 607
   Posted 4/24/2007 6:55 PM (GMT -6)   
OH yeah. I just have this problem. It is painful like "hell." I was in pain for literally two weeks, and I am still having a mark on the roof top, but not painful unless I used some hard stick to touch it. It is caused by lupus. The rhmy increased my medication Cellcept, and prescribed me Kenalog to apply three times a day. Also, he said do not use mouthrinse, but warm salt water. It does help though. I do not know it's the medication that works or the salt water. I rinse w/warm salt water three to four times a day + after eating. The doc also prescribed me Lidocaine Hydrochloride Oral Topical Solution to alleviate the pain. It is just a pain killer to apply on the roof top.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 4/24/2007 7:04 PM (GMT -6)   
Hi hope and welcome. I saw that you found the other person on our forum with tumid lupus. I do get bad mouth sores, especially when I am flaring. I have a prescription mouth rinse that helps. The pharmacy mixes it up and it has malox, benedryl, and lidocain.

I'm glad you joined the forum and think you will find a lot of support here.

Take care and I look forward to hearing more from you.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 4/24/2007 7:33 PM (GMT -6)   
I get them too and they hurt. I use Gly-oxide which you can buy almost anywhere. It sure does ease the pain and seems to heal them faster than without.

Take Care
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements

New Member

Date Joined Apr 2007
Total Posts : 16
   Posted 4/24/2007 7:59 PM (GMT -6)   
dbab and hippimom2,
Thank you both for the warm welcome.  I will definitely talk to the doc next week about the meds.  I normally do okay but some days it is painful to drink.  Wishing you both a pain free night,

Regular Member

Date Joined Jan 2007
Total Posts : 135
   Posted 4/25/2007 4:35 PM (GMT -6)   
I get them too and I use Magic mouthwash. It's Xylocaine, mylanta and benadryl mixed together. My rheumy prescribed it to me and it works instantly on the pain. It dries out the sore and cuts healing time in half. I love it.

Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06, SLE '07, Raynauds '07....Plaquenil, Hydrochlorothyazide, Cardizem, NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, Flonase.

Regular Member

Date Joined Apr 2007
Total Posts : 81
   Posted 4/25/2007 4:52 PM (GMT -6)   
Hello thr,
I get them too.  On the roof of my mouth and on my inside of my cheeks.  That along with ulcers makes for a very sore mouth at times.  What I use is plain old salt in warm water.  It has antiseptic properties.  Not too much though, it can make you sick. 
I first used after mouth surgery to clean the stitched area, on the recommendtion of the dental surgeon.  I realised then that it would keep my mouth from getting inefected from mouth sores connected to my SLE.
I also use a straw when drinking anything when my mouth is sore.
I hope you get better soon.
gossamerwings  yeah

New Member

Date Joined Apr 2007
Total Posts : 16
   Posted 4/25/2007 10:35 PM (GMT -6)   

I don't know why I didn't think of salt water.  I have been using a straw and drinking out of bottles.  Right now the sores aren't too bad because I just got off of 2000mg of antibiotics for two weeks due to an infection. 

Take care!

Regular Member

Date Joined Oct 2006
Total Posts : 281
   Posted 4/26/2007 7:13 AM (GMT -6)   
I get sores in my mouth but they are usually under my tounge. They don't hurt so much as being akward. They get quit big and last for two or three months at a time. I use a mouth rinse from my dr that helps. But I usually just leave it alone as they don't hurt to bad and I figure as long as it isn't bothering me then I can handle it. I am glad that I don't get them on the roof of my mouth. That sounds very painful.
Connie smurf
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed.

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 4/26/2007 5:22 PM (GMT -6)   
I get sores all over my mouth (cheeks, gums, tongue, under tongue and roof of mouth). My rheumy says it's from lupus and has given me 3 things to help them.... folic acid.. I take 3-5 mg a day, an Rx for a paste that works well on the ones on the inside cheek and the "magic mouthwash" that works for the rest. I hope you find some relief soon.

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)

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