Posted 5/1/2007 12:24 AM (GMT -7)
Hippi, you say you're overwhelmed. I'd be paralized! I remember how exhausted I was at your age with young children, and I was healthy. It sounds like between your ideas and advice you've gotten here you'll get through it.

You know, Hippi, I'll bet if you didn't have health problems and someone you vaguely knew did, and she called you asking for help, you'd be more than happy to pitch in. There was a mom on my daughter's baseball team a few years ago, who had parkinson's and we all helped her whenever we could or whenever she called. You might be pleasantly surprised.

As good a mom as you are, I'm sure your kids can help out too. I know your daughter is young, and Josh has a lot of pain, but they can pitch in too.

I'll be thinking of you and am anxious for your hubby to get back and give you a break.


Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Posted 5/1/2007 5:43 AM (GMT -7)
Boy do I know these sort of weeks. I have no kids, but always have so much on my plate.
How I usually get through them is with tons of vodka and xanax ;-) Kidding of course.
The best way to get through tough weeks is to just take it a step at a time.
We feel overwhelmed from the worry of it more than the actualy event.
The trick is how to turn the worry off. Best bet, just do one task at a time and know you'll get through it.

Good luck

Posted 5/1/2007 7:35 AM (GMT -7)
Hippi, good luck with your busy week. I know you will get through it ok, just take a deep breath and ask for help!!!

diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.

Posted 5/1/2007 11:21 AM (GMT -7)
Yes, one step at a time - much more than that is too much. Last night with dance rehearsal alone was exhausting and then JOsh woke up crying in agony this morning because his pain was so bad. He was sobbing and begging me to take him to the doctor so he could get help with his pain. I gave him some medicine and just sat with him and told him that if the medicine didn't kick in after a while that I would take him in. Thankfully the meds started working and he got some relief. I just keep tackling each day as it comes and try not to get too far ahead of myself. Thanks so much for all of the ongoing support. Something I am realizing about myself is that I need to get more comfortable asking for help. Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg ; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating:   Co-Moderator: Lupus and CFS Forums
Posted 5/1/2007 11:48 AM (GMT -7)
Thinking of you and sending you calming thoughts -- do one thing at a time & you'll get thru the week. Lynnwood, Co-Moderator: Lupus Forum SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1 Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus Allergies: All Sulfa-based medications; Levofloxacin,   Levaquin DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION , LUPUS RESOURCES , Donate to HealingWell , Drug Interactions
Posted 5/2/2007 3:52 AM (GMT -7)

Thinking of you and sending you energy. Yes, focus on one thing, get it done, and move on as best you can. Including, of course, trying to schedule in down time! Sorry that Josh is in so much pain. Makes a Mom feel helpless, I know.

Take Care,

Hmmm, tried to post and got an anti-spam message. Will try again, hope it doesn't come up twice.
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg wish I could taper), Imuran (2X50mg), Prilosec (20mg), Prozac (off now)

Posted 5/2/2007 4:46 AM (GMT -7)
hippi mom thinking of youy and offering as much strengt
h as i can, somehow u will get thru this terricly hectic time but remember to take some "me time" in between to catch your breath, dont be afraid to ask anyone for help, when you can, just knowing people are willing to help out can brighten a persons day! hope josh is feeling a little better and good luck with the dance t-ball and baseball practices, always in my thoughts and prayers xxx missusa
Posted 5/2/2007 4:59 AM (GMT -7)


  Just wanted to let you know I'm thinking about you and Josh and praying for much needed relief for you both.

                                                       (((Hugs))) Babs

 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Posted 5/2/2007 9:43 AM (GMT -7)
Hi Hippi, I hope you're surviving your week. Your hubby is due home the day after tomorrow and I know you're counting the hours. I hope you'll ask him to give you a break this weekend so you can get some rest. Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Posted 5/2/2007 10:37 AM (GMT -7)
Hi Hippi. I just wanted you to know I'm thinking of you and your family.  The week will be over soon.  ((Hugs))

Dx: SLE with CNS complications, major depressive disorder, Sjogrens, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, prozac, lamectil, flexeril, celebrex, lisinopril, lipitor, nexeum, seroquel, advair, actos, arthritis tylenol 
supplements: multi vitamin, B complex, C, flaxseed oil
             Better living through chemistry :D    Donna

Posted 5/2/2007 10:47 PM (GMT -7)
I just wanted to stop by and say that I hope the rest of your week goes well. As busy as you are, take some time for yourself, and breathe. We all know how important not doing too much is. ((hugs))

P.S. I hope all goes well with Josh and the both of you are able to get some releif.
Diagnosis:  Lupus Pneumonitis with Chronic Pulmonary Hemmorrhage and Anemia, Polycystic Ovarian Syndrome, Migraines  
Medications and Supplements:  60 mg Prednisone, 100 mg Imuran, 1800 mg Calcium w/ Vitamin D, 25 mg Prilosec, Iron pill 2x daily, albuterol inhaler, 50 mg visteral, 500/5 Vicoden, 25 mg Phenergan, Midrin, Imitrex

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