You having mono is interesting. I had a bad case of mono when I was 18 and was never the same after that. I never totally got my energy back and went through periods of pretty bad fatigue and got sick often. I think we did a poll on here at one time about
how many people had mono prior to having lupus and it was a pretty high number of people.
I'm confused about
what your doctor said about
being anemic - did she mean that people with lupus do not usually have low iron? If I remember right, anemia is pretty common in people with lupus. Raynaud's is also a disease that can go hand in hand with lupus - a lot of us have it as a secondary condition, There's no way I can say whether you have lupus or not, and if you do, it may just be taking a long time to manifest itself and show up in your labs. I was also thinking about
what she said about
the 1:40 ANA. If 1 in 3 is a false positive, then 2 out of 3 are truly positive.
Just hang in there and try to be patient. I know it is hard and very frustrating. It may be a long time before you get a diagnosis, so in the meantime I hope a doctor will be willing to try to treat your symptoms and help you feel better. Your doctor sounds like she is pretty thorough.
Take care and don't give up looking for answers.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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