Posted 5/1/2007 9:45 AM (GMT -7)

Hi Mary ann, I know you must be scared to death. Feeling like somthing is going on you have no control over. But you are doing the right thing. You do have control. You are going to the doctor. You realize there is a problem. They will figure it out and you will do what it takes to fix it. That is all we can do. Find out the problem and fight it. Hang in there. June isn't to far away. I would suggest though that you right every thing that happens between now and than on paper. that way when you get into the doctor you will have it right there. Somtimes when I go to the doctor I completely space out. Plus that will give you some idea of what's going on with you.


Hang in there praying for ya



God Bless
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , Opana ER for pain, Evista for osteo,. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
Come ye, all that are weary and heavy laden, and I will give you rest!

Posted 5/1/2007 10:56 AM (GMT -7)

Mary Ann,

I have that experience all the time.  I can even look at my calendar to double check an apt, get in the car, go to the appt and still be at the wrong place , wrong time ,.  I just don't store things well.  I'm sure that inside my chart nurses write braindead in red pen.  To make it worse, my kids dentist said recently that they can't see us anymore because I've missed too many apts.  I felt like such an idiot.  But I can look at the calendar but as soon as I walk away......poof it's gone.

I guess I've just accepted this as part of who I am and I try to use as many self reminders as possible to over compensate.  Luckily, my friends help to remind me of stuff and don't get mad when I call them to find out when a field trip is or where the baseball practice is at.

It is very frustrating and I hate being percieved as a ding bat.  I hope your dr can help and that you can feel better about things.  I know where you stand on this and I can totally sympathize.

take care,



Posted 5/1/2007 11:00 AM (GMT -7)
Mary Ann, I can understand how scary this must be for you. I really hope that either the neuro or your rheumy can help. THis disease doesn't leave much in our bodies untouched. Hang in there and you'll be in my prayers. Take care Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg ; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating:   Co-Moderator: Lupus and CFS Forums
Posted 5/2/2007 10:55 AM (GMT -7)
Hi NanaBee.  I often feel that my short term memory has been sucked from my brain.  I was diagnosed in 2005, but I can't erase the 2003 memory of a neurologist suggesting to me that I had somatiform (psychosomatic) disorder- WHILE he was giving me a spinal tap.  Anyway, last visit my rheumy suggested I might want to get a neuro work-up for memory and balance issues.  I empathize with your "lost mind."  Many hugs and good luck.

Dx: SLE with CNS complications, major depressive disorder, Sjogrens, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, prozac, lamectil, flexeril, celebrex, lisinopril, lipitor, nexeum, seroquel, advair, actos, arthritis tylenol 
supplements: multi vitamin, B complex, C, flaxseed oil
             Better living through chemistry :D    Donna

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