Losing my mind

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Veteran Member

Date Joined Jun 2005
Total Posts : 541
   Posted 4/30/2007 7:56 PM (GMT -6)   
I feel like I am losing my mind.  Before I was ever diagnosed with MCTD(about 4 year ago) I went to a neurologist because I was having problems with my memory.  AFter doing tests, including a brain mri she told me that I was depressed.  Well, looking back I know now that I was sick we just hadn't figured it out yet.
Well, now my rheumy wants me to go to the neurologist again because I have been having weird migraines.  I've never had them before.  Anyway......
I got real sick yesterday, threw up and then my vision blurred and I got real dizzy.  I took a pain pill and fell asleep and then I felt better. 
Today, I alled my old neurologist to make an appointment.  I explained that I was a former patient and wanted to come back in.  The nurse said okay what is your name.  I told her my name and there was dead silence.  She said you are already scheduled for an appointment in June.  I was dumbfounded.  I have no recollection of making that appointment.  No, my rheumy didn't make it either because I can choose who I went to and didn't discuss who with my rheumy.  I told the nurse that I guess I need to see the neurologist more than I thought.  I was so embarrased and very shocked.  Now, I am afraid that I may be doing things at work that are drastic and could cause severe problems.  I am scared to death to make a decision. 
Please help.....
Mary Ann
**Diagnosed MCTD(doctor now says it is Lupus),Fibromyalgia,Raynaud's June 2005
**Sleep Apnea - February 2006
**Congenital Heart condition-Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
**Meds:  Plaquenil, MTX, Limbrel, Folic Acid, Metoprolol, Lotrel, Alprazolam, Cymbalta, Vicodin
 "No matter what happens, God is in control.  He is God, I am not, what a relief!"

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 4/30/2007 8:17 PM (GMT -6)   
I'm sorry to hear that you are having issues with your memory. I also have issues and I write EVERYTHING down now and I also put everything in my computer calendar with the reminders on in case plan A doesn't work. I also work a full time job and I would be in so much trouble if I didn't write it all down. Hopefully the neuro can give you some relief. I think if you tell him about the appointment issue, he will understand, afterall he's a neurologist :-).

Take Care
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 4/30/2007 8:41 PM (GMT -6)   
If your memory issues are due to MCTD or Lupus, your rheumy may be able to help you more than a neuro. Or if your neuro is especially concerned, he might send you to a neuropsychologist for memory testing. I wouldn't fail to discuss this with both my rheumy and my neuro.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 4/30/2007 10:27 PM (GMT -6)   
Hi Mary Ann,
   I replied to your other post before I saw this one. I'm sorry your having problems with your memory. I hope the neuro can shed some light on this for you. These diseases and some of the meds can make our memory foggy too. I hope thats the case for you and not a neurological problem. I lost alot of my short and long term memory when I had the stroke. The seizures I was having even made it worse. It is so annoying when someone is talking to me about something we did or said and I don't have a clue as to what their talking about. It can be embarrassing at times.
   I hope this gets better for you soon. Please let us know what you find out. You will be in my thoughts and prayers.
                                                       ((hugs)) Babs
 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 5/1/2007 11:45 AM (GMT -6)   

Hi Mary ann, I know you must be scared to death. Feeling like somthing is going on you have no control over. But you are doing the right thing. You do have control. You are going to the doctor. You realize there is a problem. They will figure it out and you will do what it takes to fix it. That is all we can do. Find out the problem and fight it. Hang in there. June isn't to far away. I would suggest though that you right every thing that happens between now and than on paper. that way when you get into the doctor you will have it right there. Somtimes when I go to the doctor I completely space out. Plus that will give you some idea of what's going on with you.


Hang in there praying for ya



God Bless
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , Opana ER for pain, Evista for osteo,. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
Come ye, all that are weary and heavy laden, and I will give you rest!

Regular Member

Date Joined Mar 2007
Total Posts : 89
   Posted 5/1/2007 12:56 PM (GMT -6)   

Mary Ann,

I have that experience all the time.  I can even look at my calendar to double check an apt, get in the car, go to the appt and still be at the wrong place , wrong time ,.  I just don't store things well.  I'm sure that inside my chart nurses write braindead in red pen.  To make it worse, my kids dentist said recently that they can't see us anymore because I've missed too many apts.  I felt like such an idiot.  But I can look at the calendar but as soon as I walk away......poof it's gone.

I guess I've just accepted this as part of who I am and I try to use as many self reminders as possible to over compensate.  Luckily, my friends help to remind me of stuff and don't get mad when I call them to find out when a field trip is or where the baseball practice is at.

It is very frustrating and I hate being percieved as a ding bat.  I hope your dr can help and that you can feel better about things.  I know where you stand on this and I can totally sympathize.

take care,



Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 5/1/2007 1:00 PM (GMT -6)   
Mary Ann, I can understand how scary this must be for you. I really hope that either the neuro or your rheumy can help. THis disease doesn't leave much in our bodies untouched. Hang in there and you'll be in my prayers.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 5/2/2007 12:55 PM (GMT -6)   
Hi NanaBee.  I often feel that my short term memory has been sucked from my brain.  I was diagnosed in 2005, but I can't erase the 2003 memory of a neurologist suggesting to me that I had somatiform (psychosomatic) disorder- WHILE he was giving me a spinal tap.  Anyway, last visit my rheumy suggested I might want to get a neuro work-up for memory and balance issues.  I empathize with your "lost mind."  Many hugs and good luck.

Dx: SLE with CNS complications, major depressive disorder, Sjogrens, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, prozac, lamectil, flexeril, celebrex, lisinopril, lipitor, nexeum, seroquel, advair, actos, arthritis tylenol 
supplements: multi vitamin, B complex, C, flaxseed oil
             Better living through chemistry :D    Donna

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