How are you feeling today??
ok, i just need some help and feed back, i don't have Lupus, but my sister does. she cannot walk, she has to crawl most of the time. she can't type or write, she can't see. do alot of ya'll have all these problems, or are we doing something wrong here. she get disability checks cuz she can't work. she feels as though there is something in the room with here sometimes. she'll have a good week, but that's everyonce in a while, we took her down on the cerequil, and she got better for a week or so, then she was back to not being able to
open her eyes, and always leaning forward,and crawling now we took her off the cerequil and she got better for a week or so, then the worse happened again, right now we're yoyoing, and i don't know what to do, and my parents look so tired and like there giving up hope. i atleast want her to be stable, and just have bad days every once in while, but right now it's the other way around.
oh and to top it all off, now she's having stomach problems!! she can't eat, with out feeling sick. the docs wants us to take her to a stomach specialist. it's just one thing after another. i just want to stop all the meds they have to many side effects. she's been trying to go to collage to become a doctor, but she can't pay attention. she don't know what the day is. she's not really living. she's just there. and that's a problem for her and me. while she's suffering, how can i go out and live. it's not fair!!
i'll keep you all in my prays too, i feel for you all!! just tell me what we're doing wrong??? sorry sooooo long!