Sorry it's been a few days since I wrote. I started to write you ladies back in response the other day, but I was feeling very sick and don't know that I ever got it sent out.
I am back in the hospital. Saturday morning my "cold symptoms" got much worse, they turned into my lungs bleeding, sore throat, coughing until I was sick, shortness of breath and my temp spiked from an average 97 degrees to an unbearable 102.9. I spent my morning sitting in the bathroom leaned up against the wall wrapped in a blanket. My mom called my PCP and told him what was going on. He advised that we be on our we to the ER or call the pulmonary clinic and see if they could have me directly admitted to the respiratory unit. So here I am. My new home away from home.
I feel like I'm going thru the same thing over and over again. What I can't understand is how I have had a bad chest x-ray everytime I've had one in the last 3 months, unitl the one I had after my appt on Tuesday, finally I got news that things were looking better, and now I'm back here at the hospital. The chest x-rays show cloudy with infiltrates again. Now I'm being flushed with IV antibiotics, and steroids plus they have put me back on advair which has even more steroids. My doctor is the one working the respiratory floor here at the hospital for the next couple of days. She plans on keeping me here a few more days for observation. They seem to think that my steroids have been helping me fight off some infection in my lungs that has finally taken over. I am so exhausted. I knew something wasn't right but they kept telling me that I was having side effects from the prednisone. I think when they saw how elevated my white blood cells were they should have started looking for problems then. I have to redo my sleep study now, which really sucks because it was hard enough the first time. But at least here they keep me on oxygen, when I'm at home I just have to fight through it. I told my pulm today that I don't want her to send me home without oxygen again, because I'm scared to death to fall asleep, I'm already having problems breathing awake and we know that it is worse when I sleep.
Another pulm I saw over the weekend seems to think this is more like a lupus flare than a cold gone bad.
I'm not sure what to think, but now that I am sick we cannot up my Imuran doses, and that's a concern because my rheumy wants me on my full dosage for at least another month before we decide whether to go the cytoxin route. They will not change my Imuran now until I'm all the way better.
Sorry if this doesn't make sense I'm pretty tired ands out of it, I should be off to sleep.
I'll try and keep you guys updated. My friend was nice enough to loan me her laptop tonight, so I thought I'd check in. I'll let you know what I find out as soon as I can. Hope everyone is doing okay, I don't have enough energy to go thru the forum right now.
Diagnosis: Lupus Pneumonitis with Chronic Pulmonary Hemmorrhage and Anemia, Polycystic Ovarian Syndrome, Migraines
Medications and Supplements: 60 mg Prednisone, 100 mg Imuran, 1800 mg Calcium w/ Vitamin D, 25 mg Prilosec, Iron pill 2x daily, albuterol inhaler, 50 mg visteral, 500/5 Vicoden, 25 mg Phenergan, Midrin, Imitrex