Hi Lucy and welcome. Barb gave you some great information and I really don't have a lot to add. I have read the same things that Barb told you about
ANA and lupus. I have a positive ANA but it's fairly low which made it harder for me to get diagnosed. My son also has a mildly positive ANA, but sometimes his is negative. He has joint pain and fatigue and is being treated for juvenile arthritis, but there are new things coming up in his case now, so we're not exactly sure what is going on. As I'm sure you are figuring out, lupus can be a very difficult disease to diagnose.
I don't blame you for being scared about
the bone marrow biopsy - the whole thing sounds pretty scary. Like Barb said, several members here have had it done, so they can tell you their experience with it. Barb is a great resource and support for people who are going to have the biopsy since she has been through it many times herself.
Please feel free to ask any other questions you and also know that we are here if you need some support during rough times.
Take care and I'm glad you joined us.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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