Breathing difficulties Lupus-related?

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Regular Member

Date Joined Apr 2007
Total Posts : 28
   Posted 5/12/2007 9:25 AM (GMT -6)   
OK so here's the thing.    about 3 weeks ago  I  left  Malaysia and entered into Thailand. ALmost immediately after entering into Thailand, I started having difficulties with my breathing . Because of my major Lupus flare that happened this past MArch , my rheumy thought that perhaps my breathing problems were Lupus-related (however,  I have never had breathing problems in my entire life).  Needless to say , I found the most reputable hospital I could find in Southern Thailand and got achest x-ray and pulmonary function test.   The results came back perfectly. The Internal Medicine Doctors that I met with told me my breathing problems were actually NOT Lupus-related and that my lungs are just having a difficult time adjusting to the muggy/humid climate (it is the beginning of rainy season here in Thailand).  However, I'm still not convinced......
So, I was wondering -have any of you experienced breathing problems that were related to your Lupus?  The problems I am having , are that I  can't seem to inhale enough air/oxygen. I'm always taking very deep breaths or trying to yawn because my "normal" breaths are not satisfactory.  I'm not in pain - it's actually annoying more than anything.  I am taking bronchodilators (that seem to help) as well as an asthma med (although i don't have asthma confused  ) and a mucolytic.  I 'm wondering if I'm being over-medicated????? I don't like that fact that I have to be on these meds as well as my Lupus meds for the next few months.
Any thoughts on this?           
25, currently backpacking SE Asia
Diagnosed with Lupus: 1999
Daily meds: 400mg Plaquenil, 150mg Voltaren, 15mg Prednisone

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 5/12/2007 12:31 PM (GMT -6)   
Hi Jen, I have breathing problems very severe ones. I just went to the doctor wensday she said the reason my problems were worse is because I already have breathing problems and the humidity is making it worse. Also if you are taking in deep breathes it is actually not good for you. when you are feeling out of breath you should breath in as normal as possible and purse your lips and slowly breath out. chances are the reason you are not getting enough 02 is because you are not breathing out enough carbon dioxide. It takes a while to get adjusted to new climates. I have to use 02 24/7

enjoy your trip I wish I could back pack again I envy you
God Bless
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex.
Come ye, all that are weary and heavy laden, and I will give you rest!

Regular Member

Date Joined Apr 2007
Total Posts : 43
   Posted 5/15/2007 2:48 AM (GMT -6)   
My lupus problems at this point are strictly related to my lungs and breathing.  I have shortness of breath, lupus pneumonitis and pulmonary hemorrhage. 
I think that when there are any infiltrates or cloudiness in you r chest x-rays they seem to be fairly obvious.  If the doc said that it is just the humidity it very well may be just that. 
We will pray that the results stay unrelated to your lupus.  Enjoy the rest of your trip.  Best wishes.
Diagnosis:  Lupus Pneumonitis with Chronic Pulmonary Hemmorrhage and Anemia, Polycystic Ovarian Syndrome, Migraines  
Medications and Supplements:  60 mg Prednisone, 100 mg Imuran, 1800 mg Calcium w/ Vitamin D, 25 mg Prilosec, Iron pill 2x daily, albuterol inhaler, 50 mg visteral, 500/5 Vicoden, 25 mg Phenergan, Midrin, Imitrex

Veteran Member

Date Joined Jan 2007
Total Posts : 2446
   Posted 5/15/2007 10:52 AM (GMT -6)   
I just noticed breathing issues this past week. I started Plaq two weeks ago and last Friday while working out, I lost my breath and got werid heart palpitations. It happened again when I mowed the lawn on Sunday. Since then, I feel it's tough to take a deep breath. I was thinking it was the weather and a high allergy season.
Who knows! This Lupus has given me a surprise every day.
Hope you feel better
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