Hi Y.T. I also have been having issues with pain management lately too - I think the hot humid weather and being out in the sun at my kids' ball games has added to my pain. I agree with Barb that everyone has different needs for pain relief depending on the level of pain and how they respond to different meds.
I can't take NSAIDs because of stomach and kidney issues, so I have been taking tramadol for a little over 2 years. Tramadol (Ultram) isn't a narcotic pain med but works in a similar way and it had worked very well for me for a long time. I think that because I have been on it for so long that I have built up a tollerance to it. I do have a few low dose hydrocodone pills for days of more severe pain and those work the best for me to keep my pain under control. However, my doc doesn't prescribe enough hydrocodone for me to take it everyday, so I will probably need to talk to him about
my recent increase in pain.
I'm really glad you will be talking to your rheumy on Tuesday and you will be letting him know how bad your pain has gotten. I strongly believe that we are entitled to be as comfortable and pain free as possible. I really hope your rheumy can help. I'd be interested to know what your rheumy has to say if you are up to giving us an update.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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