I just got back on my thyroid medicine (had to stop it for 6 weeks prior to my nuclear thryoid scan), so treating the fatigue in that aspect remains to be seen. I also switched from Synthroid, which I have always been on, to Armour, in hopes that the T3 and inactive T1 and T2 may work better. My problem now, is during this workup of thyroid, they discovered the abnormal RNP, which is a specific indicator to MCTD. So, now, I am wondering if the majority of the fatigue was the MCTD in progress and not the thryoid. My thyroid level didn't go bonkers until sometime between September 2006 and March 2007, but the fatigue has gotten horrible over the last 7 years (right after I had my last child). Can I ask you what thyroid medicine you are on, and the treatment you had for your thryoid cancer (surgical removal, I suppose)? I am in the process of checking with my health insurance to go to Barnes-Jewish Hospital in St. Louis, to speak with better endocrinologists and a rheumatologist. Like I said before, I haven't officially got the word on my labs from my primary doctor--I'm just lucky enough to be a transcriptionist and have access to my records! Shhh--don't tell anyone!!
Thanks for the welcome! Since you have UCTD, can you answer a question for me? Or two? Last week, I had a strange red, raised disc-shaped area arise on the top fatpad of my pinky. It was not warm and did not itch, and lasted for 2 days--then it was gone. Also, for the past 3 days, the inner aspects of both my top eyelids have been swollen. Do you think this could be related to the rest of the wacked-out things going on in this body of mine? Also, last fall (about the time my TSH went wild), I developed two different fever blisters at different times, which I have never had in my life. Is this considered a mouth ulcer since basically they were on my outer lips?
I am very glad I joined. I'd much rather talk with real people who understand each other than most of the doctors who roll their eyes at you!
Diagnoses: Hashimoto's disease, acne, fatigue, headaches, hypertension and "as-of-yet-unconfirmed-but-in-the-process" MCTD.