I would ask to get checked your complement levels. They are related to a type of cardiac edema, that can cause some of these symptoms. I am sorry no one is listening and I can relate. It took 3 years for diagnosis of Porphyria for me and hearing it is all in your head, or you could have it but so rare you probably don't. I wish I could do something for you. Next time you are in the ER and go through this ask to speak to a patient advocate. I would also call the administration and complain. Maybe complaining will help. I know someone who did the same and she is now getting responses from the hospital and they are working with her too. I hope you feel better soon.
sle 99 w/cns & autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 99, fibromyalgia 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency severe 4/07. Meds are baclofen 40 mg, prenatal tabs, calcium, potassium, vit D prescription 50,000 iu, qvar, albuteral, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, artificial tears, stuff for the sjogrens.