Central Nervous System and CHRONIC PAIN< FIbro, Myofascial, etc

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Charity F
Regular Member

Date Joined May 2007
Total Posts : 130
   Posted 5/15/2007 12:26 AM (GMT -6)   
Hi, y'all! Great to be here at this great board! Seriously, I'm so much happier since I found this place. I live with CP from a car accident last Summer. I was a vibrant happy and healthy person and then CP took over my life. It's a hell! it's a nightmare, it's so surreal! and I'm scared : (
I have found such great and helpful info here on this condition, etc.
I am learning from reading and my dr's how CP is also a problem with the CNS and is "like a furnace turned ON all the time" and that pain meds ONLY COOL It like a sprinkler cools you on the hottest Summer day; the pain still there and the furnace still rages
I'd appreciate hearing any thoughts on this concept.
once again, thank you all
Charity Faith
"every night I cut my heart out and in the morning I find it's full again"
From "The English Patient"

Regular Member

Date Joined May 2006
Total Posts : 236
   Posted 5/15/2007 8:27 PM (GMT -6)   
I too have the CNS version, although it seems to like the organs better these days.  When I first had symptoms of Lupus I had CP, hemipelgia and muscle twitching.  For years I looked for help.  I was diagnosed with borderline lupus at the onset then they switched to depression ( I wasn't depressed but after constantly being told I was and in chronic pain and disability, I eventually became convinced that they must be correct - it was all in my head- It was very surreal then and still is today).  Eventually, one year I had dementia, blood clots, pericarditis and chostrocondritis back to back and neuromuscular heart problems.  Finally, I was rechecked and found to have Lupus.  I know one other person with the CNS version.  Her story is much like mine, except her muscle weakness is more pronounced.  I no longer have chronic pain but I remember the days well.  Hang in there, apparently the disease can change its M.O.  Nerve pain is way up there on the charts.  The only thing comparing for me was my severe flare up of the RA.  Good news; I now have an extremely high tolerance to pain.  There is a bright side to everything I suppose.  Well, I wish you the best on your journey - Kristin 

Charity F
Regular Member

Date Joined May 2007
Total Posts : 130
   Posted 5/16/2007 9:14 AM (GMT -6)   
CNSKris: Kristin : ) Thank you for your words of experience and encouragement. It's not in your head, pain is pain huh? I was a "normal person" before all this; I mean yeah, I got the occasional headache, PMS cramp, etc but before I was rear-ended I had no history of CP. It is surreal as you said--I'm still in disbelief. I internalize a lot of this; feeling as I'm flawed..(why I found this board: support support support!!!
My mother had/has Lupus and had seizures and flare-ups. I have even pondered, "well, maybe the condition(?) lay dormant in my spine and then the Whiplash "released It". I don't know. BUT I do know I have CP, seizures, muscle twitching and never had such terrible high flaming pain like this. My pain is all day every day :(
TOLERANCE TO PAIN: I am hoping for any improvement even if that is just a higher tolerance for pain. I'm at 9 mo's. There are days I work ANYWAY with a level 9 pain..
Do you know what brought on your pain?:
What do you mean by "I no longer have CP?"? How did it stop?
DID YOU SEE A neurologist for all this?
Thanks so much Kristin

blessings, Charity & Faith
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