Posted 5/18/2007 10:47 AM (GMT -7)
Lynnwood's descript ion of plaq being a stealth med is a perfect descript ion. I also agree that it helps control mild lupus symptoms pretty well. I felt best the first year I was on it and responded to it pretty well. I found it helped with both the fatigue and the pain. I still had both they were just less severe. THen as my disease progressed it didn't control things as well and eventually I went on prednisone. My rheumy explained that he does not want me to come off the plaq though because he is worried that I could get pretty sick if I went off of it. I have read from several people here that they stopped it because they didn't think it was doing anything for them and then they went into terrible flares that took a long time to get out of. So I think it does do a lot more than we realize it does. I also like that it has a lot fewer harmful side effects than a lot of other lupus meds. But, everyone is different in how they respond to meds. If you're not sure the plaq is working for you, it's worth talking to your rheumy about and get his/her opinion about it. Take care Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg ; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating:   Co-Moderator: Lupus and CFS Forums
Posted 5/18/2007 6:39 PM (GMT -7)
i was taking plaquinal for 10 yrs and in the begining i felt a differnce.ive been off it for 3 weeks now and dont notice a difference.not sure if i will be going back on it.hope that helps you .oh i also have been taking prednisone for 10 yrs also .i havent been able to get off that drug.take care of marie
Posted 5/19/2007 4:44 PM (GMT -7)
I'm been on it for about 6 months? My pcp put me on 800 a day. two months later my rheumy knocked it down to 400 mil. a day. I immiediately crashed. Than my pcp put me back on 800mil two weeks ago. and I'm feeling much better again. The only problem with that is I don't know anyone that takes that much and I am a little concerned about it. but as far as my energy level is it has helped. and possibly some inflmation hard to tell though because I take pred. and vicodin too.
God Bless
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex.
Come ye, all that are weary and heavy laden, and I will give you rest!

Posted 5/19/2007 4:56 PM (GMT -7)
I've been on plaquenil for >10 years. It's never helped with pain, but it definitely reduce any skin lesions (I used to get them all the time) and helps me handle the sun a little better. I've been taking 400 mg / day for nearly 9 years, but also haven't had to take prednisone for ~9 years. (YAY)

SLE diagnosed 1992
Peripheral Neuropathy diagnosed 2002/2003
Type II Diabetes diagnosed 2006
Meds: plaquenil, neurontin, relafen, nortryptiline, soma (as needed)

Posted 5/19/2007 8:37 PM (GMT -7)
It has helped me alot...I thought I was just Mr cool, because after 2-1/2 yrs, I wasn't feeling any pain. Then after about a yr being off. I hit rock bottom, I couldn't move, legs were so bad that I was out of work for the whole month of April...Had to go back on plaquenil, I will never stop taken it again.
Enjoy what you can today and leave the rest for another day.

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