Posted 5/18/2007 10:34 AM (GMT -7)

This is a picture of when I started getting the rash on my right ankle that one time.  The picture is not that good but its kind of hard when your twisting and turning yourself and got your foot hiked up on the toilet seat trying to take a pic :)  This doesn't show the worst part of it however I didn't photobucket that one and I can't access my pics at home since I'm at work.  This is basically how it starts out.

http://i28.photobucket.com/albums/c208/dbab75/IMG_0273.jpg


"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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Posted 5/19/2007 3:19 AM (GMT -7)

hi again,

just want to say that i have that exact same picture!  i have major skin involvement, rashes, sores, livedo reticularis (huge weblike rash on my stomach halfway down my legs, it is not pretty!).  yes, it is just lupus stuff at least that is what i was told by my dermie.  i have a whole catalog of pics.  my dermie says that i am a poster child for lupus skin involvement.  a week ago i had beautiful, healthy skin and now i look like a crack addict from sores that are huge and gross (the disability doctor asked if i used, lol!  never in my life).  the sun and flourescent lights really bring about rashes on my face, hands, arms and feet if i am wearing sandals.  also, taking a shower brings "out" the rashes on my feet and makes the livedo more pronounced.  it all seems strange but you get used to it.  most of it is nothing to worry about but you have to protect yourself with lots of sunscreen, long sleeves and hats.

e


dx jan 06:
sle, leukopenia, neuropathy, interstitial cystitis, raynaud's, dermatomyositis may 07

Posted 5/19/2007 5:09 PM (GMT -7)
Hi des, I really don't know anything about that type of rash. I just wanted to say I was impressed with how well you did taking that ohto in that possition! LOL. Just teasing. I sure hope this on your thigh isn't somthing new or a sign of things to come this summer.

Love
carol
God Bless
Carol
 
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex. pred.10.mil.
 
Come ye, all that are weary and heavy laden, and I will give you rest!
 
 

Posted 5/21/2007 6:14 AM (GMT -7)
Thanks bella... I'm glad I'm not the only one :) It was so hot on Saturday and I wore long sleeves because we were going out to the mall and I was miserable. Not to mention that everyone probably looked at me like I was an idiot. lol I know what you mean about looking gross. Fortunately I don't have any scars as the rashes I get don't scar but when the rashes come out, I'm sure people think I'm a strange one.

Liked that Carol? I tried taking a picture of one on my scalp too and it just didn't turn out too well lol. I had to have my hubby do it and I hate getting him involved in this stuff. I just hate reminding him of how sick I am.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


https://www.healingwell.com/donate

Posted 5/21/2007 7:35 AM (GMT -7)
I just wanted to say that my rheumy told me to wear sunscreen even under my clothes, because most clothing isnt as protective as we would think.

Does ayone else do this?

Just thought maybe that could be why rashes on other parts of the bod : )

Darlene
Chronic Fatigue 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007

Posted 5/21/2007 7:54 AM (GMT -7)
Des, I don't know if any or your sores are discoid-like, but my mother had lupus and nearly always had sores on her chest. She was an invalid and the only time she went outside was a rare trip out to dinner.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Posted 5/21/2007 11:42 AM (GMT -7)
Yes Darlene, you should wear it under your clothes. Someone was stating that there is a special detergant that you can buy that actually puts a sunscreen in your clothes however I don't remember who posted that. Also best to wear light clothes as darker clothes seem to "soak" up the sun.

Mine are not discoid like, as they don't scar. The worse they do is leave like a dry patchy outlined around the rash. My husband says they aren't as bad as I make them out to be but of course he is not the ones that have to walk around with them. lol
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


https://www.healingwell.com/donate

Posted 5/21/2007 3:11 PM (GMT -7)
Actually I just read that darker clothes are better as they allow *less sun* to pass through to the skin! But of course lighter clothes are not as hot! What's a person to do???! Lynnwood, Co-Moderator: Lupus Forum SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1 Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus Allergies: All Sulfa-based medications; Levofloxacin,   Levaquin DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION , LUPUS RESOURCES , Donate to HealingWell , Drug Interactions
Posted 5/21/2007 5:47 PM (GMT -7)

I try to stay out of the sun as much as possible, but when riding in the car, etc. I have been using that "Rit SunGuard Laundry Treatment" on the light color clothing that I wear in the car, it does seem to help some....

It is extremely cheap compared to my other meds. :) I have picked it up at the grocery store, it lasts through several laundry washings and is easy to use.


Ellen
Diagnosed with Lupus - April 2002
Diagnosed with Crohn's Disease - January 2003 (problems since early 1990)
Fibromyalgia 2005 
Meds:  Lunesta 2mg, Flexeril 10mg as needed, Immuran 100mg, Plaquenil 200mg, Probiotics, Multi-vitamin, fish oil
 

Posted 5/21/2007 5:51 PM (GMT -7)
Ellen, I'm glad you reminded me of the Rit treatment. I must remember to get some the next time I go to the store. I don't get sores on my skin, but am so sympathetic to those of you who do. I'll be thinking of you more than ever as the summer season begins.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

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