Thanks everyone for the support and the tips about
tapering. Babs, you know me too well when you told me not to overdo it - I probably have overdone it the past few days because I've been so relieved to have some energy, but now I plan to slow down some. I'm pretty tired tonight. Lynnwood, I agree about
staying on the 15mg for a little while to make sure I really get out of the flare I was in. I'm thinking about
calling my rheumy again and asking about
it. I'd love to stay at 15 for at least another 2 weeks or so and get things more under control. When I do taper, I think I'm going to do what Sue says she does.
Goldenwings, that's interesting about
the pain when you taper. In the past I did okay when I would taper from 10 to 7.5 but I haven't successfully been able to go to 5mg though. By the second or third day at 5mg I always feel rotten, have lots of pain and feel like I have the flu. I've never stuck it out to see if it gets better because I feel so horrible. I had no idea the pain was like the pain of fibro.
I know I've said it before, I just wish this stuff wasn't so bad for you. It helps me so much, except for the wired feeling keeping me up at night. I guess I'm just really glad to have some relief but really scared about
tapering and maybe going downhill again. If I have trouble tapering, I will definitely call my rheumy.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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