Posted 5/24/2007 2:22 PM (GMT -7)
Babs and Hippi, I appreciate your comments and thoughts. I called my PCP and she wants to see me. I didn't feel like going in today so in my typical procrastinating way, I made an appt to go in tomorrow afternoon. Why do today what you can put off till tomorrow. Ain't fatigue fun.

Let's just all get better!!!!

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Posted 5/24/2007 2:25 PM (GMT -7)
Oh, I forgot to mention that I have a silver dollar-size knot on the top of my head, right where the headache is. That's what the dr. wants to see. I'm a copy cat. My hubby has a cyst growing on the back of his head that is going to be surgically removed. Now, we don't want him to one-up me on this health stuff do we, so I had to grow my own knot.

I'm not worried about it, just want these headaches to go away.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Posted 5/24/2007 3:28 PM (GMT -7)
Pat I hope everything is okay. That's wierd about the knot on your head. Do you think that is where the pain is coming from? I guess you and your hubby really are connected, lol. Let us know how the appointment goes. Take care Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg ; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums
Posted 5/24/2007 6:20 PM (GMT -7)
Headaches are so debilitating!

I went through months where I only had a day or two without a migraine. And they did change in type of pain and where they were at and extra symptoms constantly, but it just wouldnt go away.

Finally they passed.

If I remember right my mom would get swelling when she had a migraine.

So sorry that you are feeling this miserable pain.

Enjoy the rain! I too am a rainy day lover. (my hubby thinks I am crazy)

Let us know what your doctor says.

Darlene
Chronic Fatigue 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007

Posted 5/24/2007 7:32 PM (GMT -7)

Hope your headaches is okay after seeing the doctor.  I agree.  Headache seems to bother most of us.  I hate it too, especially those seemingly non-stop headache/migraines.

Let us know how it goes.  Take care.

Posted 5/24/2007 7:55 PM (GMT -7)
Babs and Darlene, I'm trying to send this rain your way. Thanks for all your sweet comments. You're so funny Hippi - and right - my hubby and I really are connected.

I really am enjoying the weather and all the beautiful new folliage in my backyard. And I have found a guy who works real cheap and he's gotten my yard back in shape so I can enjoy it again. I even filled my bird feeders this weekend.

And hubby came home tonight with the name of a masseuse who comes to the house, so guess who I'm going to call first thing in the morning. yeah yeah If I can just keep enough energy to enjoy my wonderful but limited life, maybe some of these health issues can be put on the back burner. I'm not too good at pushing myself, but it's something I am going to try to do.

Well, I'm off to get some more tramadol. Haha. Hope everyone gets some rest an a good night's sleep tonight. My prayer tonight is that we all awaken feeling rested and refreshed! tongue

((((((((((You guys are absolutely the best))))))))))

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Posted 5/25/2007 5:22 AM (GMT -7)
Allergies to certain foods can be a main cause of headaches. Keep a food journal and see what may be flaring these headaches.
I know how it feels. I used to get terrible tension and migraines all the time.
Good luck

Jen
Posted 5/25/2007 4:02 PM (GMT -7)
patty hope you are feeling better. I use frozen corn to ease my headaches sometimes it works and sometimes not. I go into a quiet area in the house and close the blinds the only sound I have is the fan blowing. I have those kind of headaches for days. I feel for you. Like I said hope you are feeling better.

Veronica
Posted 5/25/2007 6:39 PM (GMT -7)
Pat, I was just wondering if you made it to your appointment and what the doc said. I hope you got some relief from your headache today, Take care Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg ; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums
Posted 5/26/2007 1:10 PM (GMT -7)
I know this is kind of a superficial sounding idea, but sometimes drinking a lot of water really helps the headaches go away. I'll drink a big glass before bed, another when I wake up in the night (either in pain or because I need the bathroom!), another when I get up,.... Don't know why, but it seems to help a little when the drugs don't. (Doesn't cost much to try, either!) Lynnwood, Co-Moderator: Lupus Forum SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1 Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus Allergies: All Sulfa-based medications; Levofloxacin,   Levaquin DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION , LUPUS RESOURCES , Donate to HealingWell , Drug Interactions
Posted 5/26/2007 8:31 PM (GMT -7)
Thanks for your concern and suggestions. Lynnwood, I would never have thought about drinking water, but you're right -- it doesn't cost anything and it's good for us. Veronica, I've been putting an ice bag on the top of my head and the cold feels good, and Jen, my PCP and I went over food allergies, but since these headaches are relatively new, we don't yet see a connection. But I'll keep a log just to be sure.

The knot on my head was nothing. My doc and I both laughed because I don't know what my head is shaped like. I guess that means I should never get my head shaved. My hubby does every year to help raise money for cancer, and my step-daughter has started, and I've given it some thought but nah, I'll just contribute some other way.

The headaches are a variation of a migraine - ice pick migraines she called them. I thought there was only one kind of migraine and I've had those before and these are different. Des, what's the third kind? You can't be having all three! Ouch!!! What do you take for them? She gave me some samples of migraine meds and they work better than tramadol. Of course, anything helps better than tramadol. I've had it pretty bad today but it has finally quit hurting. Thanks Hippi. The meds are relpax, avert, and maxalt. She told me to figure out which one works for me. I took the relpax yesterday and after the second one got some welcome relief. I tried one of the others today (you disolve it on your tongue) but it have me acid reflux, so I'll probably stick to the relpax.

It sounds like nearly all of you suffer from headaches. I'm going to try to learn a lot more about them from my rheumy in 10 days or so, and will report back what I learn. There's absolutely no reason to have to be in pain. We believe that, don't we.

Well, I'm off to watch SNL and then off to bed. Happy Memorial Day to all of you. Let's all get some rest. And thanks again for your concern and support. I really needed it this time!

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Posted 5/27/2007 12:08 PM (GMT -7)
Pat, only about 25% of food allergies can be found with tests. The rest are trial and error. Most ppl are lactose intolerant (there is no test for that), many ppl are gluten intolerant and never know it etc. You need to keep a food journal and see what you may be eating or drinking when u get these headaches.
You can also check with your dentist to see if TMJ is causing the headaches.

Drinking water is always a GREAT idea. Most of the time we are dehydrated and don't even know it. Dehydration causes horrible headaches.

Good luck and keep us posted.
Posted 5/27/2007 3:09 PM (GMT -7)
Thanks peacesoul.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

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