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Regular Member

Date Joined Feb 2007
Total Posts : 154
   Posted 5/28/2007 3:09 AM (GMT -6)   
what is it about the night time that makes me feel more sad/anxious? i take xanax to help me sleep at night but I still cant help but feel more sad at there maybe a psychological reason? does it happen to anyone else and is there anything you can do about it?

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 5/28/2007 8:28 AM (GMT -6)   
misscali, this happens to me sometimes too. I find it strange that as tired as I am I resist going to bed at night and have this weird underlying feeling of dread. I think maybe because I'm more tired at night and when I'm trying to go to sleep, my brain has time to do a little too much thinking about my illness and about my life and it can get overwhelming sometimes. The one thing I have found that has helped me lately is to read a good book while I am going to bed. I usually read for about a half hour and find that I start to fall asleep while I'm reading. The other thing I do is to to think about some really nice things at night while trying to go to sleep. I love the mountains and we go to Colorado a lot, so I do lots of calming and peaceful visualization.

I'm guessing that you are not at all alone in this. This illness is very difficult to deal with and I do think the night can be hard. I'm sorry you are going through this because I know it's difficult.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Regular Member

Date Joined Mar 2007
Total Posts : 153
   Posted 5/28/2007 12:00 PM (GMT -6)   
Hippimom is right, your not alone in this. I think when the world gets quiet, and our households become quiet... we can hear all of our fears loud and clear.

I too read at night and drift off while reading, or if its really bad I will put a old black and white movie on (they have much less flicker to pull me out of it if I am lucky enough to fall asleep.

I used to suffere severely from anxiety and panic attacks. They were always at their worst in the evening and nighttime. Could have something to do with the circadian rhythm too. My depression would be at its worst first thing in the morning and my anxiety would be at its peak right before bed. (what a pleasant way to fall asleep ...and then to wake up lol)

A book that really helped me with my anxiety issues was "Coping With Uncertainty, 10 Simple Solutions" by Bruce Eimer, Ph. D. & Moshe S. torem M.D.

Here is what the back of the book says:
"If anything can prepare you for the uncertain, anxious, and turbulent times of life, this little manual on how to deal with the unknown is it."

After reading it, you will come away knowing you have learned the skills you need to accept uncertainty as a part of your life; a life that is happening right now, no matter what the crisis is; a life in which you know your connection with yourself and others is your priority.

Based on sound psychological and spiritual principles, Coping with Unertainty will help you to evaluate your real risks accuratley, improve your tolerance for frustration, be more flexible, and face all of your anxieties with confidence."

Please know that when it uses the word spiritual, the book does NOT hold to any one belief system. (covering me butt here : ) I believe it is using this definition of spirituality I found on the web : "An inner sense of something greater than ones self. Recognition of a meaning to exsistance that transcends ones own immediate circumstances."

That being said, it helped me alot. Gave me some concrete NOW things I could do to help myself.

Might check Amazon, I know they have used copies of books that are a real bargain.

Hope you have an anxiety free night!
Chronic Fatigue 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007

Regular Member

Date Joined Feb 2007
Total Posts : 154
   Posted 5/28/2007 1:30 PM (GMT -6)   
Thank you both so much! its good to know that I am not the only one to get more anxiety at night :) I will definately look into that book. I think it will be good to start reading at night instead of just lying awake in bed lol.

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 5/28/2007 1:54 PM (GMT -6)   

 I had this problem for a long time as well. Every night when I went to bed, the "slide show" started. Everything I could possibly think of would race through my mind over and over.

 In my case, now this is my case, I have always drank alot of caffiene and was a late night snacker. I have learned to stop all caffiene and fatty snacks at least 3 or 4 hours before I go to bed. Since I have done this I can lay down and not be as anxious and fall to sleep alot quicker.

 I hope this gets better for you soon. The others had some good ideas. Maybe your doctor can make some suggestions to help you too. Please keep us updated and take care. You will be in my thoughts and prayers.


 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 5/28/2007 3:04 PM (GMT -6)   

Hi cali, I'm sorry you aren't sleeping well. I know that feeling. I also take xanax. I don't know if you wait until just before you go to bed to take it or not. but if you take it earlier it might not be as effective. Also I have noticed that when I'm up I don't realize I'm strssing out so much because things are going on. It's not until I hit the covers that I realize I've been stressing. If any of that makes sense. There are nights when I go to sleep easily but not too many of them. I'm usually up until 3 or so. just to wake up again a few hours later and than again a few hours after that. I have had this problem before I got sick. reading might not be a bad idea. I used to read at night and it helped me relax. I need to start again I guess.


I hope somthing works for you.





God Bless
 Newly DX's Lupus.Possible CREST,COPD, high PB xanax,triam , vicodin.5x3, Evista for osteo,. oxygen Plaquanil800mil, . effexor. spiriva, xopenex.
Come ye, all that are weary and heavy laden, and I will give you rest!

Regular Member

Date Joined Apr 2007
Total Posts : 104
   Posted 5/28/2007 10:15 PM (GMT -6)   
Hello MissCali - I have a hard time sleeping some nights as well (like right now).  Like someone else mentioned, I can be so tired yet can't sleep!!!  I start thinking about really irrevelant things too and that is enough to get me pumped 
My trick is to put on a show I've seen (Law and Order repeat for instance - again - just turned one, set my tv's timer and shut my eyes and listen to the show.  It takes my mind off things and I drift off. 
My doctor gave me Lorazepam for those nights when I feel edgy and that helps too.
What about a gravol?

Regular Member

Date Joined Feb 2007
Total Posts : 154
   Posted 5/29/2007 2:35 AM (GMT -6)   
Thank you all for the advice. I do take xanax right before i go to bed so i think i will try to take it earlier and see if that helps. I am also a snacker! it seems that i cant ever get full anymore! luckily i havent gained any weight but i find myself always hungry. I'm not sure if it has to do with anxiety or not. I like the idea about putting on a show that ive already seen...ive tried falling asleep in front of the TV before but always found myself watching the shows instead of sleeping if it was something i havent seen! lol i like Law and Order..its always on!
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