Posted 5/30/2007 11:40 PM (GMT -7)
Happy Feet, Welcome to the forum. I love you name and think you have a great positive attitude. But I know you are scared. You have really been through it and it sounds like you have a ways to before you finally have a diagnosis.
I'm not familiar with a lot of what you've been going through, but some things definitely sound familiar. My ana is elevated and I have lupus. The severe skin rash on your chest and arm sound like lupus sores, and of course debilitating fatigue is something that all of us lupies suffer from.
That doesn't mean, though, that these can't be symptoms of something else and it sounds like you have doctors who are really doing their best to get a diagnosis.
There are other people here who have different autoimmune diseases and I'm sure they'll check in with you to both welcome you and to share their knowledge and experience with you.
In my case, my disease comes and goes. I have good days and bad days, but I've reached a point where I know what my limitations are, when to get out, and when to rest. Through trial and error I've learned to listen to my body.
I'm so very glad you decided to come here for support. This forum is full of great folks who support each other and welcome newcomers with open arms. Some of us check in nearly every day and others pop in from time to time. It's a great place to vent, to ask questions, and to talk to other people who understand just what you're going through. And being scared like you are, you certainly must need a support group to help you through this. That's what we're here for.
Lots of luck Happy Feet, and I hope to hear more from you.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin