I too have a true sun photosensitivity and have seriously been considering the uv clothing to layer up on.
Just a note, the more you take an antihistimine like Benadryl, Claritin, Zyrtec, etc, they do make you more sun sensitive!!!! My allergist has me on them for bad attacks, but with that combined with steroids, it can make you more prone to the reactions you are having now. Its a double edged sword. I am starting anti-histamine today but will have to really avoid sunlight this next week so I don't keep the cycle going. I literally live in the dark.
I do have tons of hints that I use for going out and have my car windows tinted. I have to use room darkening shades and I mean the thick 12 mill ones to keep sun out of my home. If anyone has questions I will do my best to answer them. I also belong to an online group for sun-sensitive people.
Love to all,
sle 99 w/cns & autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 99, fibromyalgia 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency severe 4/07. Meds are baclofen 40 mg, prenatal tabs, calcium, potassium, vit D prescript
ion 50,000 iu, qvar, albuteral, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, artificial tears, stuff for the sjogrens.