Posted 6/1/2007 10:04 AM (GMT -6)
Hippi, Gosh I have been thinking about this as well. I have such a long commute and the sun seems to seep through my car window during the late afternoon/early evening. I have been getting the darn SCLE rashes on my arms and butterfly rash on my face also and I think everyday that I need to bring my suncreen to work to slather on my arms and face before I leave work but I have been forgetting (brain fog). Will definitely need to write that down and stick it somewhere where I will see it at home to put it in my purse. I have my windows tinted as dark as the law allows but its just not enough... I wish they would make exceptions for us that suffer so greatly from the sun.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
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Posted 6/1/2007 12:24 PM (GMT -6)
Hippi, that's a hard way to learn something, isn't it. I really really really do hope this doesn't cause you to flare, especially now that you're having a few more good days. What kind of rash do you get on your arms? I've never had that, thankfully.

Thanks for the reminder.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin

Posted 6/1/2007 12:32 PM (GMT -6)
Hi Hippi.  I've been trying to avoid the sun effects, but like Lynnwood said, Atlanta has been sunny day after day and I sure don't think about the evening sun.  I hope you don't flare (hugs) and thanks for the reminder.

Dx: SLE, major depressive disorder, diabetes, fibromyalgia, asthma, gerd, sleep apnea, hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone 10mg, flexeril, prozac, lamectil, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, advair, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax, albuterol
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 

Posted 6/1/2007 1:21 PM (GMT -6)
Des --

Have you actually found car window tinting that filters UV rays?

Because of growing up under the blistering Florida sun, I've had all my cars since I started driving tinted as dark as the law allows, but I've never found anything that has been UV rated.

If you have found such, would love to know where it's at!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Posted 6/1/2007 2:04 PM (GMT -6)
Hippi,

Thanks for the reminder. Hope this doesn't cause a flare. My one and only one, in retrospect, was probably caused by me not understanding that all of the stay out of the sun cautions were for real and I mowed the lawn in shorts and a tee-shirt! Now, I was thinking that I'd be ok late in the day but thanks to you, I will be extra careful out then too.

By the way, I was taking DayPro at the time which has an extra caution about sun exposure on top of the darned disease so if anyone is taking that particular NSAD, please do take care.

Stay Strong,
Sue
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg wish I could taper), Imuran (2X50mg), Prilosec (20mg), Prozac (off now)

Posted 6/1/2007 2:30 PM (GMT -6)
Wow Lynn, I just looked up state tinting laws. Here we can have up to 5 inches down from the top of the windshield. Also we can do up to 25% tint on the front (driver/passenger) windows and any on the back seats where Florida can do pu to 28% and 15% respectively. And I just found out that medical exceptions can be given here regarding tint, I will definitely have to look into that!!
 
**edited because I got some old law info before.. updated the percentages
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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Post Edited (dbab) : 6/1/2007 1:39:53 PM (GMT-6)

Posted 6/1/2007 3:06 PM (GMT -6)
Thanks for the reminders. I would never thought that the morning and evening sunlight would affect us. I would just like you not taking precautions because I wouldn't think those sunlight would hurt. Anyway, glad to know about it and will take cautious.
Posted 6/1/2007 3:48 PM (GMT -6)
RE: Auto window tinting:
Looks like we can reduce 'light transmission' to 32% normal here in Georgia.

'Light transmission' means the ratio of the amount of total light, expressed in percentages, which is allowed to pass through a surface to the amount of light falling on the surface.

There is this clause in Ga law:
The Department of Motor Vehicle Safety may, upon application from a person required for medical reasons to be shielded from the direct rays of the sun and only if such application is supported by written attestation of such fact from a person licensed to practice medicine under Chapter 34 of Title 43, issue an exemption from the provisions of this Code section for any motor vehicle owned by such person or in which such person is a habitual passenger. The exemption shall be issued with such conditions and limitations as may be prescribed by the Department of Motor Vehicle Safety.


But, remember, that is a reduction in **light**, NOT in UV rays, which are what really affect us!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
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Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

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Posted 6/1/2007 3:56 PM (GMT -6)
Well I guess they pulled a number on me then :( They told me that my tint (that cost extra than the normal stock tint) blocked 90% of the UV rays. Of course that is their word against mine so oh well... and that was the dealership too :(
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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Posted 6/1/2007 4:01 PM (GMT -6)
Des -

You may have found some tint that has UV protection -- I don't know anything about the stuff that is built into the glass when they put your car together. I don't see why they'd lie to you, and I don't know anyway of testing something to see if it allows UV thru -- a little test meter so we can measure how much UV we're getting as we move thru the day would be nice, wouldn't it?

Cheers

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Posted 6/1/2007 4:05 PM (GMT -6)
Sure would... if they are right, then that 10% is still doing a number on me. I think I'm going to look into that medical exception and I hope they put a sticker on your car or something so I don't have to get pulled over every time a cop sees me to have to show him my paperwork. Well then I would have to worry about my sticker being stolen I guess. *sigh
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate

Posted 6/1/2007 4:07 PM (GMT -6)
I just looked online and there are UV monitors available, in a variety of sizes & types, most seem to be in the $20-30 range.

There is one really cheap one:

"A simple, reusable, credit card size device that indicates the ultraviolet light intensity. $4.95"

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Xanax, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
OTC Daily: Multivitamin, Calcium, B-12, C, D; As Needed: Ibuprofen, Tylenol Sinus

Allergies: All Sulfa-based medications; Levofloxacin,  Levaquin

DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 6/1/2007 3:10:52 PM (GMT-6)

Posted 6/1/2007 11:54 PM (GMT -6)
Hippi,

This is a timely topic. I'm haaving a lot more problems this year with the sun. The usual rash on my chest is appearing even when I use by spf 50 and just going in and out of a couple of stores. I usually get a few hives with it. This year I am getting a prickly heat type rash as well. But the most horrific part is an itch that drives me nearly out of my mind.

The best thing I have found for relief is a tepid aveeno oatmeal bath, patting myself dry, using a body butter with olive oil, shea butter and aloe. I take 2 benadryl before I go to bed. (i'm usually still itchy, but not as severe.) When I wake up, if it's at least 3 to 4 hours later, I let myself take 3, yes 3 more benadryl so I can get a little more sleep. I am not kidding, this itching is horrible. I asked the new rheumie if she could give me smething stronger for it. She said no, ask the dermatologist she is referring me to about it. However, I can't get an appt. till July. So in the meantime, this is what is working for me along with only going out after sunset...if I have enough energy!

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

Posted 6/2/2007 7:59 AM (GMT -6)
emmi, I've gotten the really prickly raised rash too that itches like crazy and have been taking benedryl at night too. The oatmeal bath is a good idea too, but you should see me try to get in and out of the bathtub - it's quite a funny sight.

I've thought about looking into some of the clothing advertised in the Lupus Now magazine to see if that helps and I defintiley need something for when I am driving or riding in the car.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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Posted 6/2/2007 9:01 AM (GMT -6)
Hi Hippiemom,

I too have a true sun photosensitivity and have seriously been considering the uv clothing to layer up on.

Just a note, the more you take an antihistimine like Benadryl, Claritin, Zyrtec, etc, they do make you more sun sensitive!!!! My allergist has me on them for bad attacks, but with that combined with steroids, it can make you more prone to the reactions you are having now. Its a double edged sword. I am starting anti-histamine today but will have to really avoid sunlight this next week so I don't keep the cycle going. I literally live in the dark. cool yeah

I do have tons of hints that I use for going out and have my car windows tinted. I have to use room darkening shades and I mean the thick 12 mill ones to keep sun out of my home. If anyone has questions I will do my best to answer them. I also belong to an online group for sun-sensitive people.

Love to all,
Leta
sle 99 w/cns & autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 99, fibromyalgia 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency severe 4/07. Meds are baclofen 40 mg, prenatal tabs, calcium, potassium, vit D prescription 50,000 iu, qvar, albuteral, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, artificial tears, stuff for the sjogrens.

Posted 6/2/2007 1:11 PM (GMT -6)
Who knew we would have to live like vampires when we got this illness devil
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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