I am so glad that you touched on this subject. This subject has caused me many heartaches in the last four years.
Four years ago I was severly injured in a car accident and I was left disabled. I was diagnosed with a condition called RSD. Then in September of last year I was diagnosed with Lupus as well. Well since then my husband and I recentlyl learnt about some rumors that were being told about me. It turns out that the people spreading these rumors about me were our next door neighbors, who also happen to be my husbands Aunt and Uncle. They were telling everyone that would listen that I am faking, I am doing this for attention, I want people to feel sorry for me and I am making it seem worse then it really was. They also sent a letter to the Insurance Company of the truck driver who hit me, telling them that I was faking, that they watched me get in and out of my pool without a cane, watched me walk around my yard without my cane, watched me hang my laundry up, etc etc.
I was devasted when I heard these rumors and my husband and I finally had it out with them three weeks ago.
What these people didn't know was that it took me 16 months of physio therapy to learn to walk again, and that was going three times a week for 2 hours a time, and that I am still in extreme pain every day and will be until the day I know longer breathe. The RSD will eventually cripple me and who knows what the Lupus will do to me.
I can't understand how people can be so cruel, especially family members.
So I say to everyone who has family members who don't understand what we are going through, if they aren't willing to learn or understand what Lupus does to us, then they aren't worth the energy it takes to worry about them.
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.